Along 2021, Active Citizenship Network signed new Memorandum of Understanding with Sociedad Española Multidisciplinar del Dolor (SEMDOR), which is a new scientific society on pain with a multidisciplinary approach in which doctors, pharmacists, psychologists, physiotherapists, nurses and other health specialists interested in pain are integrated to constitute a society in the fight against pain.
Along 2021, Active Citizenship Network signed new Memorandum of Understanding with European Munltidisciplinary Network in Pain Research and Education (EMNIPRE), a network of doctors specializing in pain treatment.
Active Citizenship Network (ACN) is glad to invite you on 17th June, 2021 from 15.00 to 16.30 CEST to the event “Patients’ right to avoid pain: reducing the burden of COVID-19, promoting best practices across EU”. It will be held in the framework of the cycle of EU Webinars «Health at the heart of the future of Europe», which ACN will hold to feed the debate of the Conference on the Future of Europe and it will include the Award Ceremony of our bi-annual project: European Civic Prize on Chronic Pain Collecting Good Practices - III edition 2020-2021.
The event will start by discussing the impact of Covid-19 on chronic pain patients, with concrete experiences and data from patients and healthcare professionals, also telling how the EU institutions are working in support of the topic and the innovation development. It will continue describing the European Civic Prize on Chronic Pain project and awarding the 4 winners and also the next steps about chronic pain management and policy will be discussed, focusing on paediatric and cancer pain.
This multi-stakeholder event – which will involve representatives of the civil society, patients, experts and institutions - has the aim to demonstrate what this community can offer in terms of raising awareness about the phenomenon, enhancing the body of knowledge of positive cases and successful experiences, and strengthening commitment to this topic.
From the account of oncological and chronic patients during the pandemic, it emerged how they have been left almost alone for several months, a situation that jeopardized 20 years of prevention. Hence, Active Citizenship Network drafted a Manifesto with 10 recommendations – that has been already signed by 32 associations from 15 countries - addressed to the institutions to remark non-covid patients' unmet needs. Above all, encourage forms of monitoring as “Follow the Money” to monitor together the funds of Recovery Plans that each European country is receiving and engage European citizens to improve health systems. There isthe need to be heard because, as in any reconstruction, the involvement of a large number of active and aware social and civic actors is crucial.
The XV European Patients’ Rights Day has been celebrated with a virtual event by Active Citizenship Network with its traditional format of a big multi-stakeholder conference focused on the importance of the citizen organizations’ engagement and a multisectoral approach to take action on cross-border health threats, actual and future. The 2021 conference focused on showing and discussing examples of citizen’s engagement in health policies in this particular historical moment: a first day, dedicated to the health challenges faced by non-COVID patients and a second day, focused on the resilience of Healthcare Systems and the national immunization plans. Read more
As part of the 15th European Patients’ Rights Day, Active Citizenship Network - the European branch of Cittadinanzattiva - collected in a video the opinions of some representatives of the institutions, civil society and the scientific community, with the aim of launching a concrete message to the decision makers who took part in the Global Health Summit, held in Rome on May 21st, during the Italian Presidency of the G20.
The Summit was an opportunity to share the lessons learned from the pandemic and to define a common commitment to building a healthier, safer and more sustainable world. Global leaders and high-level experts discussed how to improve health security, strengthen our health systems and strengthen Europe's capacity to deal with future crises in a spirit of solidarity. In this context, Active Citizenship Network has also published a Manifesto with 10 recommendations addressed to institutions and signed by 50 associations from 18 countries, to underline the unmet needs of non-Covid patients. To see the video, click here.
In the age of COVID-19, the European Patients’ Rights Day (EPRD) on the 18th of April 2021 represented an opportunity to send messages of hope and commitment, from different healthcare stakeholders partners of ACN, on the protection of the health of European citizens. Here you can find the video messages received.
Here you can find some examples of all the initiatives organized all around Europe. The European Patients’ Rights Day has become a regular appointment to improve patients’ rights in Europe and in each Member State. If you wish to add an event dedicated to the celebration of the European Patients’ Rights Day in your country, please write
Among the contemporary challenges, the ability of cities and territories to transform themselves into inclusive, participatory and resilient contexts, able not only to adapt to changes, but also to cope with them through good planning in the use of resources and directly involving citizens, is becoming increasingly important.
On the occasion of the Annual European Patients 'Rights Day, "Together for Life" (TFL), historic national partner from Albania of ACN, celebrates its commitment to protect patients' rights with important legal awards.
Three children gained their rights after three years of efforts and commitment of "Together for Life" organisation in Albania to address the issue of children born with hearing problems.
The Administrative Court of Tirana decided to accept the request of the TFL's lawyer to compensate with 9,300,000 all the family of a 5-year-old patient with hearing problems, meanwhile for the second case the hospital decided to approve the agreement to include the child on the waiting list and the third case benefited from the surgery after one year of positive pressure on the public institutions.