Delivering patient value throughout the healthcare system: a debate on citizens' expectations
The civic society and patients’ advocacy groups committed to improve health and well-being across Europe are aware that the political context following the upcoming European elections could be characterized by less or no significant EU action on health. This is not how it should be. Citizens and patients are political actors who understand and recognize the advantages of having a strong and harmonized European health policy.
After the European election Active Citizenship Network (ACN) will continue to advocate on and influence health political priorities and to increase the cooperation among the EU Institutions, citizens and patient organizations. For this reason, we encourage the new EU Parliament to provide continuity promoting a new MEPs Interest Group on patients’ rights following the successful experience of the one launched by ACN in 2015.
This is, in synthesis, the main message coming from the first event of the 13th edition of the European Patients’ Rights Day, held at the European Parliament in Brussels today, and organized by Active Citizenship Network, the European Branch of the Italian NGO Cittadinanzattiva.
The event was co-hosted by MEPs Brando Benifei and Elena Gentile, and it was realized thanks to the support of: MSD, Boehringer Ingelheim, Copma, Kyowa Kirin, UCB.
In these days a large number of Europeans believe the EU is heading in the wrong direction, but we hope to convert that dissatisfaction into democratic zeal rather than political apathy. For this reason, we transformed the Brussels event of the European Patients' Rights Day in a debate on citizens’ expectations about health issues, to ask to candidate MEPs to share their opinions on the challenges for Health in the EU 2019 -2024.
The topic of health has not appeared in the pre-electoral debate, despite the civil society, patient advocacy groups, professionals and numerous stakeholders engaged in the field, have long been disseminating a series of manifestos (to which, in some cases, Active Citizenship Network has even contributed) focused on the future of the European Health Agenda. It is therefore paradoxical that these demands have not received adequate attention from official policy. This is a further reason to encourage opportunities for discussion and dialogue, such as the one of today, between those who care about health as a common good and those who will be called upon, if elected, to take decisions for millions of Europeans.
The 2019 conference titled “Delivering patient value throughout the healthcare system” is characterized by a twofold structure: the today event focused on “A Debate on citizens' expectations” and tomorrow’s event (April 10th, 10:00 – 12:30) focused on “Digital Health and Personalized Medicine”.
- Addressing the challenges of concomitant deployment of COVID-19 and influenza vaccination
- Community PRO (Participation Resilience Organizing)
- Increasing consciousness and access to treatment, reducing the burden of cardiovascular diseases across Europe – AWARNESS CAMPAIGN
- ENGAGE – Engage Society for Risk Awareness and Resilience
- EUROPEAN PATIENTS’ RIGHTS DAY 2022
- European Pillar of Social Rights & the commitment of Cittadinanzattiva
- Stroke prevention and life after stroke, during the pandemic
- European Pillar of Social Rights & chronic pain
- Promoting civic information to better address the collateral damage of COVID-19 on cardiovascular disease across Europe
- European Pillar of Social Rights & COVID-19 emergency
- European Pillar of Social Rights & childcare and support for minors
- Therapeutic adherence during the COVID-19 pandemic across Europe: impact, experiences and perspectives from PAGs & relevant stakeholders
- The role of the European Pillar of Social Rights ambassadors
- AHEAD: Action for Health and Equity Addressing medical Deserts
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