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XIII EUROPEAN PATIENTS’ RIGHTS DAY 2019

XIII Giornata

The 13th European Patients’ Rights Day (EPRD) will be celebrated at the European Parliament in Brussels by Active Citizenship Network (ACN) on April 2019.

The 2019 conference titled “Delivering patient value throughout the healthcare system” will have a twofold structure:

a multi-stakeholder event focused on A Debate on citizens' expectationson April 9th (12:30 - 15:00)
and
a mono-stakeholder event focused on “Digital Health and Personalized Medicine” on April 10th  (10:00 – 12:30).

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Campaign

European active citizens for vaccines promotion 2019

Improve the awareness on vaccine benefit across Europe
Project

Leaders and activists engaged in social, civic and patients associations, parents, teachers, health workers, bloggers and popularizers: everyone can commit to disseminate correct scientific information, ready to defend the use of vaccinations from the wave of misinformation that is being spreading for some years

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The Engagement of Cittadinanzattiva-Active Citizenship Network on Therapeutic Adherence

At the National level
The topic of therapeutic adherence was addressed by Cittadinanzattiva through the National Coalition of Associations for Patients Suffering Chronic Diseases (CnAMC). The CnAMC is a network of Cittadinanzattiva established in 1996, which represents an example of crosscutting alliance between associations of people with chronic and rare diseases for the protection of their rights. It has about one hundred members.

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Network News

#MakeWorkWork for those affected by Neurological Disorders and Chronic Pain Conditions

Active Citizenship Network supports the Written Declaration, under Rule 136 of Parliament’s Rules of Procedure, on access to employment for those affected by neurological disorders and chronic pain conditions. The initiative is promoted by the European Federation of Neurological Associations (EFNA) and Pain Alliance Europe (PAE) with the aim to encourage research into and access to innovative treatments, promote prevention and self-management approaches, decrease stigma and work together to improve quality of life for people living with these disabling conditions.

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4 March 2016 - Improving patients’ rights in the age of the Cross Border Healthcare Directive

Active Citizenship Network organized a webinar-conference on 4 March 2016 in Rome, on the topic of “Improving patients’ rights in the age of the Cross Border Healthcare Directive”. The event involved online and on-the-spot participation of national and international experts to debate the European Directive on patients’ rights in cross-border healthcare and the current state of its implementation throughout Europe.
On this occasion, the communication campaign “Patients’ rights have no borders” has been presented for the first time.
Read more about the event here.

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