Increasing consciousness and access to treatment, reducing the burden of cardiovascular diseases across Europe

FRAMEWORK

Cardiovascular disease and its many manifestations have a major impact on the lives of millions of patients and those around them. There is no doubt that cardiovascular disease will remain the most frequent cause of death and disability in Europe and throughout the world. At the global level, the World Health Organization reported that “cardiovascular diseases (CVDs) take the lives of 17.9 million people every year, 31% of all global deaths” (2018). By 2030, the number of people who die from CVDs, mainly from heart disease and stroke, will increase to reach 23.3 million.

In order to reduce the number of deaths due to cardiovascular diseases, in 2013 European Member States signed the Health for Growth Programme, the third multi-annual programme of EU action in the field of health for the period 2014-2020. The aim is to identify, spread and promote the adoption of validated good practices for efficient and sustainable prevention measures, facing the main risk factors related to cardiovascular diseases, fighting tobacco use, alcohol dependence, obesity and promoting good lifestyles.

PROJECT DESCRIPTION  

Before the EU elections, last 9th of April 2019, in occasion of the XIII European Patients' Rights Day, Active Citizenship Network has promoted a debate on citizens' expectations with a selection of MEP candidates and, then, published a Position Paper on prevention, innovation and a new health governance for the new EU Institutions, drafted by ACN with the endorsement of 18 associations. The first request send to the new EU Institutions is linked with the need to increase resources for health prevention. In coherence with this message, starting from the second half of 2019, ACN has decided to increase the awareness of a growing number of patients’ rights associations on the importance of the prevention and management of pathologies correlated to cardiovascular protection, as well as on the new available therapeutic options that exist today. To do so, it was launched a multi-annual EU project with the aim of increasing consciousness on correct lifestyles and access to treatment, collecting good practices and reducing the burden of cardiovascular diseases across Europe.

The project is articulated in the following 4 initiatives:

  • A cycle of training seminars addressed to the leaders of civic and patients’ associations from different European countries, which are not yet particularly focused on the theme of cardiovascular protection.
    image001 bis

    29 & 30 OCTOBER: Read more and download all the materials of the first two-sessions seminar

    16-17 November 2020: Read more and download all the materials of the second two-sessions seminar

    14-15 DECEMBER 16:30-18:30 CET REGISTER for the third two-sessions seminar

  • An European and national awareness campaign on proper lifestyles and on the prevention of the risks linked to cardiovascular disorders and pathologies.
  • The third initiative consists in the promotion of exchange of experiences between the national associations and EU advocacy groups that are specifically devoted to the theme of cardiovascular protection.
  • A public event at the European Parliament, hosted by the Interest Group "European Patients' Rights & CrossBorder Healthcare,” to share good practices and political views to subject to the attention of the new European institutions.

 

OBJECTIVES

The Project aims to:

  • Increasing the awareness of a growing number of patients’ rights associations on the importance of the prevention and management of pathologies correlated to cardiovascular protection, as well as on the new available therapeutic options today;
  • Raising the citizens awareness about EU patients’ rights, with specific reference to cardiovascular diseases, and inform them on how foster their implementation;
  • Informing citizens on the organisations committed to give information to patients affected by CVDs and about the national patient associations available for assistance;
  • Contributing to fill the discrepancy between the associations already focused on CVDs and the ones who are not yet.

 

NATIONAL PARTNER ORGANIZATIONS

The following associations joined the project confirming their participation at all the four initiatives:

Country

Name & website

Logo

Albania

Together for Life

 image001

Bulgaria

Association of Patients with Cardiovascular Diseases

 image002
Bulgaria Bulgarian Association Bulgarian Association for Patients' Defense (BAPD) image001aaa

Bulgaria

Patients' Organizations      “With You”

 image003

Cyprus

Nicosia Heart Patients’ Association

 image004

France

Indecosa

image005

Italy

Cittadinanzattiva - Tribunal for patients’ rights

 image006

Latvia

Par Sirdi

 image007

Lithuania

Saugok Save

 image008
Macedonia Association of doctors for intersectoral collaboration ADICD (Member of Macedoninan Medical Association MMA) image002sdasdasd

Malta

Malta Health Network

 image009

Malta

National Patients’ Organization of Malta

 image010

Portugal

Diabetic Patients Association

 image011

The Netherlands

European Patients Empowerment for Customized Solution

 image012

The Netherlands

euPrevent

 image013

Poland

Institute for Patients' Rights & Health Education

 image014

Slovenia

Kultlab Celje Society

 image015

Spain

Foro Espanol de Pacientes

 image016

Spain

Federacion Espanola de Diabetes

 image017

Sweden

FOKUS patient

 image018

Ukraine

Southern Ukrainian Center of Citizens’ Rights in Health

 image019

 

EUROPEAN ADVOCACY EXPERT GROUPS

The following European associations will support Active Citizenship Network providing advocacy expertise on CVDs at the EU level:

Name & website

Logo

European Congenital Heart Disease Organisation

 image020

Stroke Alliance for Europe

 image021

The Heart Failure Policy Network

 Heart failure

 

NATIONAL KNOWLEDGE PARTNER

The following associations will support Active Citizenship Network providing advocacy expertise on CVDs at the local level:

Country

Name & website

Logo

Italy

Federazione diabete Emilia Romagna Fe.D.E.R.

 image023

Italy

Cittadinanzattiva-Emilia Romagna

 image024

 

SCIENTIFIC PARTNER

Società Italiana di Medicina Generale e delle Cure Primarie (S.I.M.G.) will support Active Citizenship Network providing scientific content

image025

 

The project will be realized thanks to the support of

image026

 

The commitment of Cittadinanzattiva-Active Citizenship Network in the prevention of cardiovascular diseases (ENIT)

To know more please write to: This email address is being protected from spambots. You need JavaScript enabled to view it.

(page updated on Sept. 2020)

This site uses cookies. By continuing to browse the site you are agreeing to our use of cookies.