Therapeutic adherence: value the impact for patients and healthcare system (BIO)

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23 May 2018  9:30 - 13:00
Room PHS - P7C050, European Parliament

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Vytenis Andriukaitis
2014 - present: Commissioner for Health and Food Safety.  2014: Vice-President of the World Health Assembly. 2012-14: Minister for Health in his Country. 2001-04: Deputy Speaker of the Lithuanian Parliament. 1999-2000: Party leader of Lietuvos Socialdemokratų Partija (LSDP, Social Democratic Party of Lithuania). 1992-04 and 2008-14: Member of the Lithuanian Parliament; 1990-92: Signatory of the act of independence of Lithuania and co-author of the country's constitution; 1989: Founder of the LSDP; 1975-93: Medical doctor and surgeon in Kaunas, Ignalina and Vilnius; 1984 Master's degree in History, Vilnius University; 1975: Medical doctor's degree, Kaunas Institute of Medicine

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Brando Benifei
European Federalist, is one of the youngest MEPs and is from La Spezia, Italy. His main fields of legislative work in the EP are Employment and social affairs and Foreign affairs. He is co-chair of the Youth Intergroup and vice-chair of the Disability Intergroup. He was responsible for key legislative and non-legislative reports on the social inclusion and integration of refugees into the EU labour market; on youth employment policy such as the Youth Guarantee and the Youth Employment Initiative.

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Neil Betteridge
He now runs Neil Betteridge Associates (UK), a company offering patient insight at a strategic level to UK and international projects involving patient associations, health professional organisations and private companies. He currently helps to coordinate much of the European work of GAfPA, the Global Alliance for Patient Access. He is International Liaison Officer, Public Affairs, for EULAR and in the UK he is Co-Chair of the Chronic Pain Policy Coalition. Formerly CEO of the patient group Arthritis Care (UK), he has also been a UK ministerial adviser on both health and disability issues.

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MEP David Borrelli
He is member of the Non-attached Members Group in the European Parliament.
He was born in 1971 in Treviso. Entrepreneur in the IT sector. Councillor in Treviso (2008-2013), candidate for President of the Veneto region (2010), Member of the European Parliament (2014- ).
He is member of the Committee on Industry, Research and Energy (ITRE), Committee on International Trade (INTA), Delegations for the relations with the Mashreq Countries, South Africa and Delegation of the Parliamentary Assembly of the Union for the Mediterranean.

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Jacqueline Bowman-Busato
She brings over 20 years’ experience in healthcare and life sciences policy-driven advocacy, stakeholder engagement and strategic alliance-building. She drives the policy impact pillar of the SCiE (Self-Care Initiative Europe). She has transformed a patient-led platform into an equally-weighted, multi-stakeholder think-tank for person-centred care. She has advised the Innovative Medicines Initiative (IMI) on patient engagement strategy, and provides expert advice to the European Commission on self-care policies. Jacqueline works extensively on Eu as well as global projects bringing the key stakeholders together to build lasting consensus on global, regional and national levels. Jacqueline holds an LLB Hons (English Law and French Law), a post-graduate diploma in Strategic Communications and an MBA from the Vlerick Business School.

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Matteo Buccioli
Born in Forlì in October 1982, graduated in clinical engineering and in business administration and economics, since 2007 he works as Health Operation Manager. in 2008 he is a founding member of AMMP onlus of which he becomes President in 2016, from 2017 he is Vice President of the Italian Federation IPF and Rare Lung Diseases FIMARP onlus. Happily married and father is committed to make its own contribution to the development of the health system.

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Umberto Comberiati
Chairman of the Value Added Medicines Group, Medicines for Europe, and Head of Marketing Europe at Teva Pharmaceuticals. Scientific background in pharmaceutical chemistry and translational medicine complemented with an MBA. Worked as a consultant for several global pharmaceutical corporations and expertise in commercial strategy and pricing & reimbursement.

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Mep José Inácio Da Silva Ramos Antunes De Faria
Bachelor in Law by the Universidade de Lisboa. Completed a post-degree in Environmental Law by the same University and is currently preparing his PhD thesis in International Public Law at the Universidad de Cáceres. Lawyer until 2014. From 2007 to 2009 he was President of the National Jurisdiction Council of Partido da Terra – MPT (Earth Party). He served as Secretary-General of this party from 2009 until 2011, date from which he took the role of member of the its National Political Council and Electoral Coordinator. In 2012 he becomes legal and political advisor to the MPT political group at the Lisbon Municipal Assembly. He presided to the MPT between 2014 and 2018 and was elected a Member of the European Parliament in 2014. He sits as a full Member of the European Parliament's Committee on the Environment, Public Health and Food Safety and of the Delegation for relations with the countries of Central America and the Delegation to the Euro-Latin American Parliamentary Assembly.

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Antonio Gaudioso
He is currently General Secretary of Cittadinanzattiva, an Italian civic organization that promotes civic participation and protects citizens' rights. After his graduation in Political Science and International Relationship at the University of Macerata he got a Certificate in HTA from the London School of Economics. While working for Cittadinanzattiva he has been responsible for national and international relationships with several stakeholders, like the Italian Government, the Italian Parliament, the European Commission and the European Parliament. He worked on the adoption of the first Law on Pain and contributed to several information campaigns related to rights’ protection, with a special focus on health rights.

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Elena Gentile
She successfully graduated in Medicine at the University of Padova in 1978 and worked as paediatrician at the hospital of Cerignola from 1981 to 2005. She dedicated over 30 years working in regional and local politics. From August 1985 to July 1986 she was Vice-Mayor of Cerignola, responsible for health, environment and social services. In July 1991 she was the Mayor of Cerignola. From May 2005 to June 2014, she was member of the Regional Assembly in Puglia and was responsible for Welfare and Social Affairs and then for Health. In 2014, she was elected to the European Parliament joining the group of the Progressive Alliance of Socialists and Democrats (S&D). She is currently Full Member of the Committee on Employment and Social Affairs and of the Delegation to the EU-Montenegro Stabilisation and Association Parliamentary Committee. She is also substitute member in the Committee on Environment, Public Health and Food Safety and in the Committee of Culture and education.

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Guendalina Graffigna
She received a PhD in Social Psychology at Catholic University of the Sacred Hearth of Milan (Italy) where she actually is Associate Professor. At the same University she teaches Qualitative Methodology and Psychology for Social Marketing, she coordinates the Executive Training Program in Marketing Intelligence: consumer and social data scientist; and she is member of the Coordination Commettee of the PhD School in Psychology.  She is currently Director of the Study and Training Centre of ASSIRM (Italian Association of Marketing Research Institutes) and coordinator of the EngageMinds Research Center (Consumer and Health Research Center) of the Università Cattolica di Milano. Her research and scientific activities are mainly devoted to patient engagement in health and wellbeing, consumer health psychology, healthcare organization innovation and ehealth.

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Alessia Gramuglia
She is the EFN Policy Advisor. She has a background in European policies and public affairs, having worked in the European Parliament. Before joining the EFN, in September 2017, she has also worked for an EU Public Affairs Consultancy, where she was in charge of EU health-related issues, monitoring and analysing EU policies. She holds a MA degree in European Studies from the University of Bologna and studied International Relations at the University of Hamburg.

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Souzi Makri
She is involved with the Cyprus League Against Rheumatism as member of the board, and responsible for the office in Limassol. She is an expert patient on the expert patient list of EMA, and she is chairing two European organisations: ENFA, the European Network for Fibromyalgia Associations and Agora, a platform  organisation for rheumatic patients in southern European countries. She was involved with a group that revised the guidelines for treatment for fibromyalgia for EULAR, the European League Against Rheumatism.

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Kiril Soleski
Kiril Soleski, MD,MSc,Sci is President of Association of doctors with interdisciplinary approach for children with disabilities (ADICD), Member of Macedonian Medical Association(MMA).  He has worked at Private General Practice for 13 years. More recently, he was a member of managing team of the CSO working on public health issue. The majority of his current research focus is on public health, family and community medicine and children disabilities. He currently leads a team of medical professionals working on programme for  „Increasing General practitioners (GPs) knowledge and skills on early detection and intervention for children with disabilities in Macedonia:  Understanding children's disability-Key role of GPs“ in partnership with UNICEF, Skopje.

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Tiziana Nicoletti
Member of Cittadinanzattiva since 1994. She is part of the National Coordination of Chronic Disease Associations - Cnamc - which is a network of Cittadinanzattiva, established in 1996, which represents an example of a cross-border alliance between Associations and Federations of people affected by chronic and rare diseases, for the protection of their rights. Every year he creates a National Report of Chronicity. More than 100 organizations of people with chronic and rare diseases between associations and federations belong to it.  She is also responsible for health projects.

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Svein Olaf Olsen
He has since several years been a board member of the European Huntington Association.  His wife is from an Huntington family and their life has been deeply influenced by the disease. In his professional life he is a business entrepreneur and CEO in Anzyz Technologies a company with a disruptive self-learning AI technology.  He is based in Kristians and Norwa.

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Andrew Powrie-Smith
Communications Director at EFPIA, the European Federation of Pharmaceutical Industries and Associations. He previously worked for the Association of the British Pharmaceutical Industry as a Director responsible for the creation and delivery of the association's reputational strategy. He is also a former Director of the British Lung Foundation Scotland and Northern Ireland where he played a key role in the campaign for clinical standards on COPD, the development of British Lung Foundation Nurses in Scotland and the growth of patient support groups.

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Martin Seychell
Graduated in chemistry and pharmaceutical technology, he specialized in Chemical analysis. He has held important positions on several government boards and commissions in Malta (Food Safety Commission and the Pesticides Board). He occupied the post of Head of Directorate at the Malta Standards Authority (2001-2006). He has been responsible for the implementation of a number of EU directives in the areas of risk assessment, food safety, chemicals and cosmetic products legislation. He held the post of Director of Environment in Malta (2006-2011). He was appointed Deputy Director General for Health and Consumers at the European Commission in March 2011.

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Mariano Votta
Public affairs professional and journalist, is the Director of Active Citizenship Network (ACN), the international branch of the Italian NGO Cittadinanzattiva, where he is responsible for European Affairs. Since 2013, he has been actively involved as ACN stepped up its advocacy activities at the European Institutions, which in 2015 led to the opening of a representative office in Brussels and - above all - to the launch of the MEP Interest Group “European Patients' Rights & Cross-Border Healthcare”, promoted with the endorsement of almost 100 organizations across Europe. Furthermore, in 2016, Mariano won the Efhre International University Excellence Awards on patients’ rights. Passionate about healthcare and consumer issues, he has more than 17 years of experience in the field of advocacy, stakeholder engagement, European projects, communication and civic information.

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Donna Walsh
She is the Executive Director of the European Federation of Neurological Associations (EFNA).  She began her career working in patient advocacy as Information and Communications Officer at the Migraine Association of Ireland. This led to her first involvement at the European Headache Alliance – where she worked as Coordinator. She then moved on to take up her current position within EFNA in 2012. Since then she has been actively involved as EFNA stepped up its advocacy activities at the Brussels Institutions which culminated in February 2015 with the launch of the MEP Interest Group on Brain, Mind and Pain. She represents EFNA externally – amongst others – at the European Brain Council, European Academy of Neurology, European Society of Radiology (Patient Advisory Group) and within the Societal Impact of Pain platform.

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Catherine Weil-Olivier
After a medical degree (1973) in Paris, she has always been a Pediatrician hospital based, a Professor of Paediatrics since 1989 (University Paris 7) and Head of the Department of General Paediatrics for ten years (Hôpital Louis Mourier, Assistance Publique-Hôpitaux de Paris, Colombes, Hauts de Seine, France,1995 – 2005).
During the years of practice, she gained an extensive experience in pediatric infectious diseases and vaccine preventable diseases both in the clinical field and the epidemiological one. Since more than two decades, she has been working in two main fields: the influenza field and the vaccinology field. Now she Joined the Coalition for life course immunization.

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Jamie Wilkinson
Commenced his role as Pharmaceuticals and Professional Affairs Adviser of the PGEU in January 2014 before becoming Director of Professional Affairs in April 2015. The Pharmaceutical Group of the European Union (PGEU) is the European Association representing community pharmacists in 32 European countries.  A pharmacist by training, he has practice experience in the community pharmacy sector and academia in the UK, in addition to experience in health policy, professional affairs and advocacy.  He was educated at the Universities of Kingston & St Georges London with an MPharm, Master of Pharmacy, an MSc in Social Research Methods from the University of Sussex and an MPH, Master of Public Health from the University of Sheffield. He is a Member of the Royal Pharmaceutical Society UK, a Fellow of the Royal Society for Public Health UK and a Practitioner Member of the Faculty of Public Health UK.

Hosted by MEP David Borrelli, NI

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