“Patients' rights have no borders” - Supporters

Patient Organisations

Bulgarian Association for Patients Defence

Tel.: 02/981 66 69
Fax: 02/44 26 444
Mob.: 0886 754000

This email address is being protected from spambots. You need JavaScript enabled to view it.
This email address is being protected from spambots. You need JavaScript enabled to view it.
This email address is being protected from spambots. You need JavaScript enabled to view it.

Address: Bulgaria, Sofia
Architect Yordan Milanov street, № 10, FL 3.

 

LHRM e.V. (Leukämiehilfe RHEIN-MAIN e.V.)
Leukdmiehilfe RHEIN-MAIN e.V.  - Kontakt- und Informationsstelle f|r Erwachsene mit Blut- und Lymphom-Erkrankungen
Tel.: (+49) 06142-32123 Büro: 06142-32240
Fax: (+49) 06142-301185 Büro: 06142-175642
E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it. / This email address is being protected from spambots. You need JavaScript enabled to view it.
Address: Falltorweg 6
D-65248 Rüsselsheim - Germany

 

Networks

 

clip image002 0023
EuropaColon
Tel.: +44 1722 410 515
Address: Unit 5, Deans Farm 
               Stratford sub Castle
               Salisbury
               SP1 3YP – UK
FACEBOOK.COM/ EUROPACOLONHQ
TWITTER.COM/EUROPACOLON
YOUTUBE.COM/EUROPACOLON

 

clip image002
Global Myeloma Action Network (GMAN)     
E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.
FACEBOOK.COM/GMANconnect
TWITTER.COM/GMyelomaAn

 


World Alliance of Pituitary Organizations (WAPO)
Tel.: +79175791620
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
FACEBOOK.COM/WAPO.ORG/

“Patients' rights have no borders” - Partners

  • Austria
    Lower Austrian Patient and Nursing Advocacy

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: +43 (0)2742 9005 15752
    Website: www.patientenanwalt.com/
    Address: Rennbahnstraße 29 (Glaswürfel)
    Tor zum Landhaus
    A-3109 St. Pölten

 

  • Bulgaria
    Patients' Organizations “With You”
    http://interestgroup.activecitizenship.net/images/who-support-our-initiative/bulgaria-patients'-organization-with-you-copia.jpg
    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: +359 886 437 609
    Website: http://patients.e-zdravey.com/
    Address: Bulgaria,  Sofia 1000,
    Tsar Simeon str., 5B

 

  • Cyprus
    Cyprus Alliance for Rare Disorders

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: +357 22 319 129
    Website: http://raredisorderscyprus.com/
    Address: 31 Ifigeneias street, 2007 Strovolos, Nicosia (Cyprus)

               P.O Box 28807, 2083 Strovolos

 

  • France

    Inter-Association on health (CISS)
    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: 01 53 62 40 30
    Website: http://www.leciss.org/
    Address: 10, Villa Bosquet - 75007 Paris

 

  • Germany
    Bürger Initiative Gesundheit e.V.
    http://www.interestgroup.activecitizenship.net/images/who-support-our-initiative/germany-burger-initiative-gesundheit-e.v..jpg
    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: 0049 – 821/5086 7960
    Website: www.buerger-initiative-gesundheit.de
    Address: Beethovenstr. 2
    86150 Augsburg

 

  • Hungary
    Hungarian Federation of People with Rare and Congenital Diseases
    Címlap
    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel: +36 1 790 4532
    Website: http://www.rirosz.hu/
    Address: 1089 Budapest, Orczy út 2.

 

  • Ireland
    Irish Patients’ Association

    Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: 00353 12461157
    Website: www.irishpatients.ie
    Address: TheClinic.IE, Glenageary Shopping Centre,
    Glenageary, Co. Dublin, A96 VY20

 

  • Italy
    Cittadinanzattiva - Tribunal for patients’ rights

    E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: 06/36718444 (Monday, Wednesday And Friday from 9:30 AM to 13:30 AM)
    Website: www.cittadinanzattiva.it
    Address: via Cereate, 6 - 00183 Roma - Italy

 

  • Lithuania
    Council Of Representatives Of Patients' Organizations Of Lithuania

    E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: +370 5 262 0783 / +370 652 11555
    Website: www.pacientutaryba.lt
    Address:  Gedimino av. 28-404,
    LT-01104 Vilnius

 

  • Malta
    Malta Health Network
    http://www.interestgroup.activecitizenship.net/images/who-support-our-initiative/malta-malta-health-network.jpg
    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: (+356) 99873213
    Website: www.maltahealthnetwork.org
    Address: P.O. Box 2, Qormi Road, Marsa MRS 1000 Malta

 

  • The Netherlands
    EPECS - European Patients Empowerment for Customised Solutions


    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: +31 (0)6-36062039
    Website: http://www.epecs.eu/
    Address:  Capucijnenstraat 68 NL - 6211 RS Maastricht

 

  • Poland
    Institute for Patients’ Rights & Health Education

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: +48 (22) 628 08 63
    Website: http://www.prawapacjenta.eu/
    Address: Piękna 64a street lok .8 , 00-672 Warsaw , Poland

 

  • Slovakia
    Society of Consumer Protection

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: 00421 949314111 / 0944 533 011
    Website: www.sospotrebitelov.sk
    Address:  Nábrežie Jána Pavla II. 439/16 058 01 Poprad

 

  • Spain
    Plataforma de Organizaciones de Pacientes
    Plataforma de Organizaciones de Pacientes
    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: +34 93 106 17 59
    Website: http://www.plataformadepacientes.org/
    Address:  Paseo de las Delicias, 31, esc. izda. 5º izda. 28045 Madrid

The involvement of Active Citizenship Network in SIP 2016

In the context of the SIP 2016, ACN has been mainly involved in the Working Group 1 titled "Pain as a quality indicator for healthcare".

Because of its efforts in the fields of the protection of patients' rights and cross-borderhealthcare, ACN was entrusted with the secretariat of the Working Group 1, while Cittadinanzattiva-Tribunal for Patients' Rights was entrusted with the task of presenting, at European level, an example of good practice realized in Italy on pain treatment.

Read more...

Symposium “Societal Impact of Pain” (SIP) 2016: “Time for action”

The 6th event of the Societal Impact of Pain (SIP) will address anyone involved in pain policy e.g. healthcare professionals, politicians, representatives of pain advocacy groups, insurances, health authorities, regulators and budget holders.

Read more...

Reducing waste and inefficiency in the healthcare systems, increasing quality of patient care

Reducing waste and inefficiency

In 2016, in the framework of the celebrations for the X European Patients’ Rights Day, Active Citizenship Network has carried out a research in order to gather good practices: concrete examples of actions aimed at reducing waste and inefficiencies in healthcare (waste caused, for example, by: unnecessary services; excessive administrative costs; inefficiently delivered services; prices set too high; fraud; missed prevention opportunities etc.. ) experienced in EU and no EU countries.

Read more...

PATIENTS’ RIGHTS HAVE NO BORDERS…AS WELL AS RISKS!

 May 3rd 2016, 16:30 - 18:30
Room ASP A7H1 - European Parliament, Brussels 

Interpreting available (IT - EN) 

Programme

Read more...

“European Civic Prize on Chronic Pain - Collecting Good Practices"

logo CIVIC PRIZE

Active Citizenship Network has launched the project ”EU Civic Prize on Chronic Pain - Collecting good practices”. The aim is to give evidence of existing good practices in  European countries in terms of struggle against pain.

The establishment of a “European Civic Prize on Chronic Pain”, based on the  selection of the practices presented by different healthcare stakeholders (patients’associations, health professionals, private and public hospitals, universities, etc.) provides an occasion for demonstrating what this community can offer in terms of good practice and experiences which are useful in raising awareness about the condition, enhancing the body of knowledge of positive cases and success, and strengthening commitment to this topic.

Read more...

EUROPEAN PATIENTS’ RIGHTS DAY 2016

10th  European Patients’ Rights Day

Reducing waste and inefficiency in the healthcare systems, increasing quality of patient care


The 2016 European conference of the European Patients’ Rights Day focused on the fight against waste and inefficiency in healthcare systems in Europe and on the best practices to increase the efficacy and the quality of patient care.
It has been held on Wednesday, May 4th in Brussels at the European Parliament co-hosted by MEP David Borrelli, co-Chair of the EFDD Group and MEP Pier Nicola Pedicini, EFDD ENVI Committee Coordinator. The participants were leaders of civic and patient organizations coming from 25 Countries, some of them outside the European Union, such us Albania, Russia, Macedonia, Switzerland. With them, many representatives and leaders of 18 networks at EU level, professionals and experts, companies and providers, public relation agencies and other relevant stakeholders.

During the conference has been analyzed what has been done and what is been doing about it all around Europe and what is the role and the contribution of public and private sectors on it, as well as the ones of the civic society and patient organizations. It has been be also distributed the report of the European research carried out to find the good practices in this context. Some of the gathered good practices were showed and discussed.

The registration of the entire event could be seen here

The biographies of the speakers can be read here

Here below the programme and all the showed presentations:

10th  European Patients’ Rights Day

Reducing waste and inefficiency in the healthcare systems, increasing quality of patient care

4 May 2016, 09:30 - 13:30
European Parliament, Brussels - Room ASP A1E2

PROGRAMME

 

Chair: Neil Betteridge - independent health consultant

 

09:30 - 10:00 Opening Remarks and keynote Presentations

MEP David Borrelli - Co-Chair of the Europe of Freedom and Direct Democracy Group
MEP Piernicola Pedicini - EFDD ENVI Committee Coordinator
Mariano Votta - Director of Active Citizenship Network

 

10:00 - 10:40 Overview

‎Stéphane Vandam - Public Health Officer of World Health Organization
Paul Vincke - Managing Director of European Healthcare Fraud and Corruption Network
Cristiana Montani Natalucci - Italian Tribunal for Patients’ Rights, Italy

  

10:40 - 11:40 The good practices about transforming health care overcoming inefficiencies and waste (1st PART)

The power of Technology :

No Delays: transforming delivery of health services and reducing reliance on traditional clinical interactions”Jamie Hogg - Clinical Lead for Modernisation, NHS Grampian, Scotland
“National Development of Electronic Cancer Referral System in the Republic of Ireland” Eileen Nolan Shortiss - National Cancer Control Programme, Ireland
“Use of a software to optimize the surgical process and to assure traceability of procedures in a high throughput orthopedic hospital” - Giuseppe Banfi - Scientific Director of IRCCS Galeazzi, Italy

 

Questions and answers

 The power of a better organizational management:

“How does lean work in emergency care?”Pamela Mazzocato - Medical Management Centre “Karolinska Institutet”, Sweden
“NHS Future Focused Finance (FFF) programme” Virginia Minogue - Research lead, FFF programme, England

 

Questions and answers

11:50 - 12:30 The good practices about transforming health care overcoming inefficiencies and waste (2nd PART)

 The power of Patient Engagement:

“PDTA: assistential and diagnostic-therapeutic paths “Salvatore Leone - Amici Onlus, National Coalition of Associations for Patients suffering Chronic Diseases (CnAMC), Italy

The power of network:

“How can we use the “CHAIN” to increase value and reduce waste?” - David Evans - Contact, Help, Advice and Information Network (CHAIN), UK

 

Questions and answers

12:15 - 13:00 Round table:  

MEP Giovanni La Via - EPP (video message)

Bert Van Caelenberg - Vice President of Health First Europe

Douglas Gregory - Member of EFPIA Heath Systems Working Group

Maarten de Wit - European League Against Rheumatism (EULAR)

Antonio Longo - European Economic and Social Committee

 

13:00 - 13:15 Questions & Answers

  

13:15 - 13:30  Vytenis Andriukaitis - European Commissioner for Health and Food Safety

 13:30 Closing Remarks

Antonio Gaudioso - Secretary General of Cittadinanzattiva

For more information on the European conference and the Good Practices collection please write to Daniela Quaggia This email address is being protected from spambots. You need JavaScript enabled to view it.

Take action!

Please give us your feedback on the conference by filling in this brief  on line questionnaire and tell us the topic you would you like to suggest for the next European Patients’ Rights Day! 

 

The conference is realized thanks to the support of:

european patients rights day 2016.html sostenitori

ENS4Care: Evidence Based Guidelines for Nurses and Social Care Workers for the deployment of eHealth services

Logo Ens4care

Project Description
In 2014/2015 Active Citizenship Network has been one of the partner of the ENS4Care project:

ENS4Care is a Thematic Network gathering together 24 partners from all over Europe. Its main objective is to share good nursing and social work practices in eHealth services and, through evaluation and consensus building, create a set of guidelines on healthy lifestyle and prevention, early intervention and clinical practice, integrated care, skills development for advanced roles and nurse ePrescribing.

Read more...

ENS4CarePartners

1. European Federation of Nurses Associations (EFN) – Belgium
The EFN was established in 1971. The EFN represents 34 National Nurses Associations and its work has an effect on the daily work of 6 million nurses throughout the European Union and Europe. The EFN is the independent voice of the nursing profession and its mission is to strengthen the status and practice of the profession of nursing for the benefit of the health of the citizens and the interests of nurses in the EU & Europe. The EFN is the project coordinator of the ENS4Care Thematic Network. It leads WP1 – Project Coordination and Management of the consortium.

Read more...

This site uses cookies. By continuing to browse the site you are agreeing to our use of cookies.