Patients’ Voice - European Project

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Patients’ Voice Project is the first European Union funded project, implementing by the Universal Patient Rights Association (UPRA), that want to help to promote and advocate for patients’ rights in Northern Cyprus. It has become active since March 2016 as a partnership project between UPRA and Active Citizenship Network.

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“Patients' rights have no borders”

To celebrate the 10th Anniversary of the European Patients’ Rights Day, Active Citizenship Network has decided to organize a widespread campaign in 2016 in cooperation with some of the national patient associations involved in its network.

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“Patients' rights have no borders”

To celebrate the 10th Anniversary of the European Patients’ Rights Day, Active Citizenship Network has decided to organize a widespread campaign in 2016 in cooperation with some of the national patient associations involved in its network.

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“Patients' rights have no borders” - Supporters

Patient Organisations

Bulgarian Association for Patients Defence

Tel.: 02/981 66 69
Fax: 02/44 26 444
Mob.: 0886 754000

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Address: Bulgaria, Sofia
Architect Yordan Milanov street, № 10, FL 3.

 

LHRM e.V. (Leukämiehilfe RHEIN-MAIN e.V.)
Leukdmiehilfe RHEIN-MAIN e.V.  - Kontakt- und Informationsstelle f|r Erwachsene mit Blut- und Lymphom-Erkrankungen
Tel.: (+49) 06142-32123 Büro: 06142-32240
Fax: (+49) 06142-301185 Büro: 06142-175642
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Address: Falltorweg 6
D-65248 Rüsselsheim - Germany

 

Asociación Ciudadana de Afectados de Cistitis Intersticial
Leukdmiehilfe RHEIN-MAIN e.V.  - Kontakt- und Informationsstelle f|r Erwachsene mit Blut- und Lymphom-Erkrankungen
Tel.: 676.466.630  –  630.119.249de 17:00 a 19:00h
E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.
Address: Pareto, 55 · 08902  l’Hospitalet   (Barcelona)

 

Networks

 

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EuropaColon
Tel.: +44 1722 410 515
Address: Unit 5, Deans Farm 
               Stratford sub Castle
               Salisbury
               SP1 3YP – UK
FACEBOOK.COM/ EUROPACOLONHQ
TWITTER.COM/EUROPACOLON
YOUTUBE.COM/EUROPACOLON

 

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Global Myeloma Action Network (GMAN)     
E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.
FACEBOOK.COM/GMANconnect
TWITTER.COM/GMyelomaAn

 


World Alliance of Pituitary Organizations (WAPO)
Tel.: +79175791620
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
FACEBOOK.COM/WAPO.ORG/

“Patients' rights have no borders” - Partners

  • Austria
    Lower Austrian Patient and Nursing Advocacy

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: +43 (0)2742 9005 15752
    Website: www.patientenanwalt.com
    Address: Rennbahnstraße 29 (Glaswürfel)
    Tor zum Landhaus
    A-3109 St. Pölten

 

 

  • Bulgaria
    Patients' Organizations “With You”
    http://interestgroup.activecitizenship.net/images/who-support-our-initiative/bulgaria-patients'-organization-with-you-copia.jpg
    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: +359 886 437 609
    Website: http://patients.e-zdravey.com/
    Address: Bulgaria,  Sofia 1000,
    Tsar Simeon str., 5B

 

  • Croatia
    Croatian Association for the Promotion of Patients' Rights

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: 091 502 78 61
    Website: www.pravapacijenata.hr/hr
    Address: Zrinsko Frankopanska 2b,
    21000 Split HR

 

  • Cyprus
    Cyprus Alliance for Rare Disorders

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: +357 22 319 129
    Website: www.raredisorderscyprus.com
    Address: 31 Ifigeneias street, 2007 Strovolos, Nicosia (Cyprus)
    P.O Box 28807, 2083 Strovolos

 

  • Czech Republic
    Klub pacientů mnohočetný myelom, z.s.
    myelom
    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Website: http://www.mnohocetnymyelom.cz/
    Address: Kamenice 5, 625 00 Brno-Bohunice, Czechia

 

  • Denmark
    Rare Diseases Denmark

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: +45 3314 0010
    Website: http://sjaeldnediagnoser.dk
    Address: 21, Blekinge Boulevard 2
    2630 Taastrup

 

  • Finland
    Association of Cancer Patients in Finland

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: 044 053 3211
    Website: www.syopapotilaat.fi
    Address: Malminkaari 5,
    00700 Helsinki - Finland

 

  • France
    Inter-Association on health (CISS)

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: 01 53 62 40 30
    Website: www.leciss.org
    Address: 10, Villa Bosquet - 75007 Paris

 

  • Germany
    Bürger Initiative Gesundheit e.V.
    http://www.interestgroup.activecitizenship.net/images/who-support-our-initiative/germany-burger-initiative-gesundheit-e.v..jpg
    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: 0049 – 821/5086 7960
    Website: www.buerger-initiative-gesundheit.de
    Address: Beethovenstr. 2
    86150 Augsburg

 

  •  Greece
    Greek Alliance for Rare Diseases

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it. / This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: +30 210 7660989 / +30 210 7600289
    Website: http://pespa.gr/
    Address: Timotheou 99-101 - 16232 Athens

 

  • Hungary
    Hungarian Federation of People with Rare and Congenital Diseases
    Címlap
    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel: +36 1 790 4532
    Website: www.rirosz.hu
    Address: 1089 Budapest, Orczy út 2.

 

  • Ireland
    Irish Patients’ Association

    Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: 00353 12461157
    Website: www.irishpatients.ie
    Address: TheClinic.IE, Glenageary Shopping Centre,
    Glenageary, Co. Dublin, A96 VY20

 

  • Italy
    Cittadinanzattiva - Tribunal for patients’ rights

    E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: 06/36718444 (Monday, Wednesday And Friday from 9:30 AM to 13:30 AM)
    Website: www.cittadinanzattiva.it
    Address: via Cereate, 6 - 00183 Roma - Italy

 

  • Lithuania
    Council Of Representatives Of Patients' Organizations Of Lithuania

    E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: +370 5 262 0783 / +370 652 11555
    Website: www.pacientutaryba.lt
    Address:  Gedimino av. 28-404,
    LT-01104 Vilnius

 

  • Malta
    Malta Health Network
    http://www.interestgroup.activecitizenship.net/images/who-support-our-initiative/malta-malta-health-network.jpg
    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: (+356) 99873213
    Website: www.maltahealthnetwork.org
    Address: P.O. Box 2, Qormi Road, Marsa MRS 1000 Malta

 

  • The Netherlands
    EPECS - European Patients Empowerment for Customised Solutions


    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: +31 (0)6-36062039
    Website: www.epecs.eu
    Address:  Capucijnenstraat 68 NL - 6211 RS Maastricht

 

  • Poland
    Institute for Patients’ Rights & Health Education

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: +48 (22) 628 08 63
    Website: www.prawapacjenta.eu
    Address: Piękna 64a street lok .8 , 00-672 Warsaw , Poland

 

  • Portugal
    Azorean Chronic Pain Patients Association

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: 910 696 806
    Website: http://dorcronicaacores.wixsite.com/addca
    Facebook: https://www.facebook.com/addca.acores
    Address: Rua Dr.Aristides Moreira Mota, 69
    CP. 9500-054 Ponta Delgada

 

  • Romania
    Romanian National Alliance for Rare Diseases

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: 0260.610.033 / 0735.858.667
    Website: www.bolirareromania.ro
    Address: str. Avram Iancu, nr.29, etaj III, Zalău, jud.Sălaj, România

 

  • Slovakia
    Society of Consumer Protection

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: 00421 949314111 / 0944 533 011
    Website: www.sospotrebitelov.sk
    Address:  Nábrežie Jána Pavla II. 439/16 058 01 Poprad

 

  •  Slovenia 

    SIBAHE Slovenian Foodbank
    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: +386 40 534 375
    Address: Drapšinova 5/a - 3000 Celje

    Kultlab Celje Society

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: +386 40 534 375
    Address: Drapšinova 5/a - 3000 Celje

    Association for justice and control

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.:
    Tel.: +386 40 771 814
    Address:Drapšinova 5/a - 3000 Celje

 

  • Spain
    Plataforma de Organizaciones de Pacientes
    Plataforma de Organizaciones de Pacientes
    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Tel.: +34 93 106 17 59
    Website: www.plataformadepacientes.org
    Address:  Paseo de las Delicias, 31, esc. izda. 5º izda. 28045 Madrid

 

  • United Kingdom
    Pelvic Pain Support Network

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
    Website: www.pelvicpain.org.uk
    Address: 21, Stourpaine Rd, Poole
    Dorset - BH17 9AT

The involvement of Active Citizenship Network in SIP 2016

In the context of the SIP 2016, ACN has been mainly involved in the Working Group 1 titled "Pain as a quality indicator for healthcare".

Because of its efforts in the fields of the protection of patients' rights and cross-borderhealthcare, ACN was entrusted with the secretariat of the Working Group 1, while Cittadinanzattiva-Tribunal for Patients' Rights was entrusted with the task of presenting, at European level, an example of good practice realized in Italy on pain treatment.

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Symposium “Societal Impact of Pain” (SIP) 2016: “Time for action”

The 6th event of the Societal Impact of Pain (SIP) will address anyone involved in pain policy e.g. healthcare professionals, politicians, representatives of pain advocacy groups, insurances, health authorities, regulators and budget holders.

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Reducing waste and inefficiency in the healthcare systems, increasing quality of patient care

Reducing waste and inefficiency

In 2016, in the framework of the celebrations for the X European Patients’ Rights Day, Active Citizenship Network has carried out a research in order to gather good practices: concrete examples of actions aimed at reducing waste and inefficiencies in healthcare (waste caused, for example, by: unnecessary services; excessive administrative costs; inefficiently delivered services; prices set too high; fraud; missed prevention opportunities etc.. ) experienced in EU and no EU countries.

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PATIENTS’ RIGHTS HAVE NO BORDERS…AS WELL AS RISKS!

 May 3rd 2016, 16:30 - 18:30
Room ASP A7H1 - European Parliament, Brussels 

Interpreting available (IT - EN) 

Programme

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