EUROPEAN PATIENTS’ RIGHTS DAY 2021

The role of civic society and Patients Advocacy Groups for more resilient Health Care Systems. Lessons learned toward a European Health Union

  5th & 6th May 2021, from 10:00 to 12:00
Digital Conference

To join the conference, please register here (registration is mandatory).

The XV European Patients’ Rights Day (EPRD) will be celebrated with a virtual event by Active Citizenship Network (ACN) with its traditional format of a big multi-stakeholder conference focused on the importance of the citizen organizations’ engagement and a multisectoral approach to take action on cross-border health threats, actual and future. 

The 2021 conference will have a twofold structure, focused on showing and discussing examples of citizen’s engagement in health policies in this particular historical moment: a first day, dedicated to the health challenges faced by non-COVID patients and a second day,focused on the resilience of Healthcare Systems and the national immunization plans.

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Increasing consciousness and access to treatment, reducing the burden of cardiovascular diseases across Europe - AGENDA

EUROPEAN TRAINING SEMINARS ON-LINE

AGENDA

Fourth training: 26th January 2021

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The commitment of Cittadinanzattiva-Active Citizenship Network in the oncology field at National and EU level

Cittadinanzattiva has a more than 40 year experience in the protection of citizens' rights in the health sector, which initiated with its Tribunale per i diritti del malato ("Tribunal for Patients' Rights" or TDM) in 1980 and was later strengthened through the Coordinamento nazionale Associazioni Malati Cronici (National Coordination Centre of Chronic Patients' Associations) in 1996.

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Increasing consciousness and access to treatment, reducing the burden of cardiovascular diseases across Europe - AGENDA

EUROPEAN TRAINING SEMINARS ON-LINE

AGENDA

Second training: 14^th - 15^th December 2020
from 16:30 to 18:30 cet

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XIV European Patients’ Rights Day 2020

Registration link: https://attendee.gotowebinar.com/register/7620946400284347408

Programme

 18^th NOVEMBER, 17:00-19:00

 Public and private sector challenges to address the “the Silent Tsunami”

Moderator: Brian Maguire, EURACTIV

Opening remarks

• MEP Brando Benifei (Italy), Group of the Progressive Alliance of Socialists and Democrats (S&D), Co-Chair of the Interest Group “European Patients’ Rights & Cross-Border Healthcare” and member of the Interest Group on Antimicrobial Resistance
• Mariano Votta, Director, Active Citizenship Network

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Increasing consciousness and access to treatment, reducing the burden of cardiovascular diseases across Europe - AGENDA

EUROPEAN TRAINING SEMINARS ON-LINE

AGENDA

Second training: 16^th - 17^th November 2020
from 16:30 to 18:30

16^th November session: “Cardiovascular diseases: the red flags” (View the event registration here)

Moderator: Daniela Quaggia, Active Citizenship Network

Training speeches

Marco Vatri: “Let's talk about numbers: epidemiology of the main cardiovascular diseases; incidence, prevalence, and mortality of myocardial infarction, stroke, heart failure, atrial fibrillation”

Stefano Celotto: “From the hospital to the outpatient care: how do health workers, patients, and caregivers act to ensure health in the community”

Q&A session

Alessandra Medolla: “Is it myocardial infarction? (How to recognize myocardial infarction syndrome, symptoms, and need for immediate evaluation and treatment)”

Stefano Celotto: “Is it a stroke? (How to recognize stroke syndrome, symptoms and need for immediate evaluation and treatment)”

Q&A session

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17^th November session: “From acute care to chronic care: a health pathway” (View the event registration here)

Moderator: Daniela Quaggia, Active Citizenship Network

Training speeches

Luca degli Esposti: “Evidence and strategies for cardiovascular disease prevention across European countries”

Alessandra Medolla: “Drugs discontinuation: the occult risk factor.

• Discontinuers or bad users? b. Which are the most discontinued and wrongly taken drugs?
• How computer technology may help the doctor and the patients to enhance therapeutic compliance and follow up (Apps e telemedicine)

Q&A session

Luca Degli Esposti : “Why non adherence to therapy may be hurtful for the patient's health and costly for the NHS (unused prescriptions, drug costs, and programmed check-ups, cost of re-hospitalization)”

Marco Vatri: “Pharmacological therapy: what is the evidence on the benefits of structured and aimed therapeutic interventions?

• To cure hypertension b. To reduce cholesterol levels c. To control glucose levels in diabetes”

Q&A session

SCIENTIFIC PARTNER

Società Italiana di Medicina Generale e delle Cure Primarie (S.I.M.G.) will support Active Citizenship Network providing scientific content

The project is realized thanks to the support of

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The speakers

	Damiano Parretti, General Practitioner in Perugia, Umbria, Italy. Member of the National Board of S.I.M.G., National Manager of Chronicity and Cardiovascular disease Area of S.I.M.G., Member of the Executive Council of National Stroke Observatory. Tutor and teacher in Regional Family Medicine Residency School in Umbria, Adjunct professor of General Practice in the University of Perugia.
	Stefano Celotto graduated in Medicine in 2012, completed the residency in Family Medicine in 2016 and a second level course on research in Family Medicine and Primary Care in 2019. Currently, he is an out-of-hours doctor and Family Doctor in Udine, Italy. Former regional coordinator of residents for the Italian General Practitioners' Union, he is now Teacher and member of the Didactic Council for Family Medicine Residency School in Friuli Venezia Giulia (Italy). Author of several indexed articles, especially in the field of meta-research, his interests are in the field of medical education, disease and overmedicalization prevention, management of Primary Health Care.
	Alessandra Medolla graduated in Medicine in 2011 in the Perugia University, she completed residency in Family Medicine in 2015. She is a General Practitioner and out-of-hours doctor in Perugia, Umbria, Italy. Her interests are in the field of medical training and education, Teacher in Regional Family Medicine Residency School in Umbria and member of Cardiovascular High School of S.I.M.G.
	Luca Degli Esposti Doctor of Philosophy (PhD) in Economics and Business Studies at the University of Ferrara. Consultant at CRISAL – Centre for Health Economics and Management (University of Ferrara). Scientific research, consultancy, specific training, dissemination and training in economic and managerial activity. Managerial, economic and strategic planning in favour of public administrations and other public and private facilities.
	Marco Vatri  Graduated in Medicine in 2016 in Perugia, currently a General Practitioner in training in Umbria. His interests are in the field of  ultrasonography, prescriptive appropriateness and overmedicalization prevention.

XIV European Patients’ Rights Day 2020

ONE health approach, MULTIPLE answers: 
Citizens’ engagement & stakeholders' actions
to tackle antimicrobial resistance and sustain EU progress 

 DIGITAL CONFERENCE
18th November 2020  -  17:00-19:00
19th November 2020 - 15:30-17:30

The XIV European Patients’ Rights Day (EPRD) has been celebrated by Active Citizenship Network (ACN) with a virtual multi-stakeholder conference which, this year, focuses on the topic of the fight to antimicrobial resistance (AMR) and the importance of the citizens’ engagement for a multi stakeholder action.

In 2019, the World Health Organization (WHO) named AMR in the 10 most urgent threats that will demand attention from WHO and health partners. In many parts of the world, in fact, AMR has reached alarming levels and already presents a serious social and economic burden. It is estimated to be responsible for 25,000 deaths per year in the EU alone and 700,000 deaths per year globally: AMR might cause more deaths than cancer by 2050.

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Increasing consciousness and access to treatment, reducing the burden of cardiovascular diseases across Europe

FRAMEWORK

Cardiovascular disease and its many manifestations have a major impact on the lives of millions of patients and those around them. There is no doubt that cardiovascular disease will remain the most frequent cause of death and disability in Europe and throughout the world. At the global level, the World Health Organization reported that “cardiovascular diseases (CVDs) take the lives of 17.9 million people every year, 31% of all global deaths” (2018). By 2030, the number of people who die from CVDs, mainly from heart disease and stroke, will increase to reach 23.3 million.

In order to reduce the number of deaths due to cardiovascular diseases, in 2013 European Member States signed the Health for Growth Programme, the third multi-annual programme of EU action in the field of health for the period 2014-2020. The aim is to identify, spread and promote the adoption of validated good practices for efficient and sustainable prevention measures, facing the main risk factors related to cardiovascular diseases, fighting tobacco use, alcohol dependence, obesity and promoting good lifestyles.

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Increasing consciousness and access to treatment, reducing the burden of cardiovascular diseases across Europe - AGENDA

EUROPEAN TRAINING SEMINARS ON-LINE

First training: 29^th - 30^th October 2020 from 16:30 to 18:30
29^th October session: “Primary prevention, healthy people at risk”  (View the event registration here)

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The active role of citizens in the evaluation process: methods, impact and prospects of Civic Evaluation in Italy

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