XIV European Patients’ Rights Day 2020

xiv european patients rights day 2020

Registration link: https://attendee.gotowebinar.com/register/7620946400284347408

Programme

 18th NOVEMBER, 17:00-19:00

 Public and private sector challenges to address the “the Silent Tsunami”

 

Moderator: Brian Maguire, EURACTIV

Opening remarks

  • MEP Brando Benifei (Italy), Group of the Progressive Alliance of Socialists and Democrats (S&D), Co-Chair of the Interest Group “European Patients’ Rights & Cross-Border Healthcare” and member of the Interest Group on Antimicrobial Resistance
  • Mariano Votta, Director, Active Citizenship Network

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Increasing consciousness and access to treatment, reducing the burden of cardiovascular diseases across Europe - AGENDA

EUROPEAN TRAINING SEMINARS ON-LINE

AGENDA

Second training: 16th - 17th November 2020
from 16:30 to 18:30

 

16th November session: “Cardiovascular diseases: the red flags” (View the event registration here)

Moderator: Daniela Quaggia, Active Citizenship Network

 

Training speeches

Marco Vatri: “Let's talk about numbers: epidemiology of the main cardiovascular diseases; incidence, prevalence, and mortality of myocardial infarction, stroke, heart failure, atrial fibrillation”

Stefano Celotto: “From the hospital to the outpatient care: how do health workers, patients, and caregivers act to ensure health in the community”

Q&A session

Alessandra Medolla: “Is it myocardial infarction? (How to recognize myocardial infarction syndrome, symptoms, and need for immediate evaluation and treatment)”

Stefano Celotto: “Is it a stroke? (How to recognize stroke syndrome, symptoms and need for immediate evaluation and treatment)”

Q&A session

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17th November session: “From acute care to chronic care: a health pathway” (View the event registration here)

Moderator: Daniela Quaggia, Active Citizenship Network

 

Training speeches

Luca degli Esposti: “Evidence and strategies for cardiovascular disease prevention across European countries”

Alessandra Medolla: “Drugs discontinuation: the occult risk factor.

  • Discontinuers or bad users? b. Which are the most discontinued and wrongly taken drugs?
  • How computer technology may help the doctor and the patients to enhance therapeutic compliance and follow up (Apps e telemedicine)

Q&A session

Luca Degli Esposti : “Why non adherence to therapy may be hurtful for the patient's health and costly for the NHS (unused prescriptions, drug costs, and programmed check-ups, cost of re-hospitalization)”

Marco Vatri: “Pharmacological therapy: what is the evidence on the benefits of structured and aimed therapeutic interventions?

  • To cure hypertension b. To reduce cholesterol levels c. To control glucose levels in diabetes”

Q&A session

 


 

SCIENTIFIC PARTNER

Società Italiana di Medicina Generale e delle Cure Primarie (S.I.M.G.) will support Active Citizenship Network providing scientific content

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The project is realized thanks to the support of

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The speakers

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Damiano Parretti, General Practitioner in Perugia, Umbria, Italy. Member of the National Board of S.I.M.G., National Manager of Chronicity and Cardiovascular disease Area of S.I.M.G., Member of the Executive Council of National Stroke Observatory. Tutor and teacher in Regional Family Medicine Residency School in Umbria, Adjunct professor of General Practice in the University of Perugia.

 image007  Stefano Celotto graduated in Medicine in 2012, completed the residency in Family Medicine in 2016 and a second level course on research in Family Medicine and Primary Care in 2019. Currently, he is an out-of-hours doctor and Family Doctor in Udine, Italy. Former regional coordinator of residents for the Italian General Practitioners' Union, he is now Teacher and member of the Didactic Council for Family Medicine Residency School in Friuli Venezia Giulia (Italy). Author of several indexed articles, especially in the field of meta-research, his interests are in the field of medical education, disease and overmedicalization prevention, management of Primary Health Care.
 image008  Alessandra Medolla graduated in Medicine in 2011 in the Perugia University, she completed residency in Family Medicine in 2015. She is a General Practitioner and out-of-hours doctor in Perugia, Umbria, Italy. Her interests are in the field of medical training and education, Teacher in Regional Family Medicine Residency School in Umbria and member of Cardiovascular High School of S.I.M.G.
 image009 Luca Degli Esposti Doctor of Philosophy (PhD) in Economics and Business Studies at the University of Ferrara. Consultant at CRISAL – Centre for Health Economics and Management (University of Ferrara). Scientific research, consultancy, specific training, dissemination and training in economic and managerial activity. Managerial, economic and strategic planning in favour of public administrations and other public and private facilities.
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Marco Vatri  Graduated in Medicine in 2016 in Perugia, currently a General Practitioner in training in Umbria. His interests are in the field of  ultrasonography, prescriptive appropriateness and overmedicalization prevention.

XIV European Patients’ Rights Day 2020

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ONE health approach, MULTIPLE answers: 
Citizens’ engagement & stakeholders' actions
to tackle antimicrobial resistance and sustain EU progress 

 DIGITAL CONFERENCE
18th November 2020  -  17:00-19:00
19th November 2020 - 15:30-17:30

The XIV European Patients’ Rights Day (EPRD) will be celebrated by Active Citizenship Network (ACN) with a virtual multi-stakeholder conference which, this year, focuses on the topic of the fight to antimicrobial resistance (AMR) and the importance of the citizens’ engagement for a multi stakeholder action.

To join the conference, please register here. (registration is mandatory).

In 2019, the World Health Organization (WHO) named AMR in the 10 most urgent threats that will demand attention from WHO and health partners. In many parts of the world, in fact, AMR has reached alarming levels and already presents a serious social and economic burden. It is estimated to be responsible for 25,000 deaths per year in the EU alone and 700,000 deaths per year globally: AMR might cause more deaths than cancer by 2050.

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Increasing consciousness and access to treatment, reducing the burden of cardiovascular diseases across Europe

FRAMEWORK

Cardiovascular disease and its many manifestations have a major impact on the lives of millions of patients and those around them. There is no doubt that cardiovascular disease will remain the most frequent cause of death and disability in Europe and throughout the world. At the global level, the World Health Organization reported that “cardiovascular diseases (CVDs) take the lives of 17.9 million people every year, 31% of all global deaths” (2018). By 2030, the number of people who die from CVDs, mainly from heart disease and stroke, will increase to reach 23.3 million.

In order to reduce the number of deaths due to cardiovascular diseases, in 2013 European Member States signed the Health for Growth Programme, the third multi-annual programme of EU action in the field of health for the period 2014-2020. The aim is to identify, spread and promote the adoption of validated good practices for efficient and sustainable prevention measures, facing the main risk factors related to cardiovascular diseases, fighting tobacco use, alcohol dependence, obesity and promoting good lifestyles.

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Increasing consciousness and access to treatment, reducing the burden of cardiovascular diseases across Europe - AGENDA

EUROPEAN TRAINING SEMINARS ON-LINE

First training: 29th - 30th October 2020 from 16:30 to 18:30
29th October session: “Primary prevention, healthy people at risk”  (View the event registration here)

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Informative campaign on IT Law 38/2010: “WERE NOT BORN TO SUFFER”

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Download the leaflet
Fill the online
questionnaire

The Law 38 of 2010, "Provisions for guaranteeing access to palliative care and pain therapy" represents a model law on the subject worldwide; its contents are also the result of the commitment of civic organizations aimed at protecting the rights and dignity of people in the health sector. In particular, Law 38/2010 transposes and formalizes the provisions of the "Charter of rights on unnecessary pain" and in part of the "European Charter of the rights of the patient" promoted by the Court for the rights of the patient - Cittadinanzattiva, in 2005 and 2002, giving full legitimacy to the "Right to avoid unnecessary suffering and pain" and to the "Right not to suffer unnecessarily", rights for which many organizations of citizens and patients, together with numerous motivated professionals, fought hard, fighting that idea of pain and suffering as unavoidable components of the disease.

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European Civic Prize on Chronic Pain Collecting Good Practices - III edition 2020-2021

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Active Citizenship Network is glad to launch the third edition of its bi- annual project at the European level “EU Civic Prize on Chronic Pain - Collection of good practices” with the aim to highlight existing good practices in several European countries in terms of struggle against pain.

This third edition allows us to continuing expanding the “agora” of operators of good practices on pain, encouraging the exchange of experiences among health professionals, healthcare providers, Institutions, civic associations, and patient advocacy groups.

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Exceptionally, for this edition, the Prize recognizes also outstanding initiatives that have been put in place, modified, or updated to face and mitigate the COVID – 19 pandemic consequences on chronic pain patients’ life.

Aims of the project

  • Giving continuity to the previous successful collections of good practices: “European Civic Prize on Chronic Pain - Collecting Good Practices" First Edition and Second Edition.
  • Enriching European and national experiences, expertise, data and benchmarking on chronic pain.
  • Fostering the multi-stakeholder platform of operators of good practices on pain, created in the last years of ACN’ projects on chronic pain, at European and national level.

 

Applications

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THE APPLICATION PERIOD IS OPEN!!! THE PARTICIPANTS CAN ENTER A GOOD PRACTICE BY COMPLETING THIS FORM.

Before to start Read the Guidelines 2020-2021

The award is open to any healthcare stakeholder: patients’ associations, health professionals, private and public hospitals, universities, etc.also from extra UE countries.

The deadline for submitting your good practice is the 31st of December 2020!!

 
The types of good practice to be identified has been classified in the following categories:

  • Patients’ empowerment
  • Innovation
  • Clinical practices
  • Professional education

Exceptionally, for this edition, the Prize recognizes also outstanding initiatives that have been put in place, modified, or updated to face and mitigate the COVID – 19 pandemic consequences on chronic pain patients’ life and healthcare services.

Read more in the Guidelines 2020-2021

Prize
There will be one prize in each category, allocated by the Jury (see below the members) to the  best submissions.
The winners will be offered the opportunity to share their projects during the Award ceremony,  a public European meeting pain-related, and a Publication in English in a suitable journal.

Here you can see the last two editions’ celebrations: Award Ceremony I Edition - Award Ceremony II Edition

All the gathered good practices will be collected in a Final Report like this one produced in the last edition:

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For more information, please contact Daniela Quaggia: 

This email address is being protected from spambots. You need JavaScript enabled to view it.

Other information:
“EU Civic Prize on Chronic Pain - Collection of good practices” - First Edition.
“EU Civic Prize on Chronic Pain - Collection of good practices” - Second Edition.
The Engagement of Cittadinanzattiva in the Fight against Useless Pain
Good practice: the policy of Cittadinanzattiva

 

Media Partners

aiheb   health europa

Active Citizenship Network is responsible for the scientific design and contents of this Project, that has been realized with the financial and non-financial support of

  

 

The Jury of the Prize is composed by the following project partners:

 echo efic  emha  Emnipre Spain 
 hope nopainlogocurvo  Pain Alliance  sine dolore 
uehp      

 

 

Joined For Vaccination: speakers list

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ADDRESSING VACCINE HESITANCY AND INCREASING UPTAKE IN EU
A MULTI-STAKEHOLDER PERSPECTIVE 

28th January 2020
ASP 3H1,  16.00 -18.00
European Parliament, Brussels 

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Joined For Vaccination: addressing Vaccine Hesitancy and Increasing Uptake in EU. A Multi-Stakeholder Perspective

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Official launch for the 2019-2024 term of the MEPs Interest Group “European Patients' Rights & Cross-Border Healthcare”

28th January 2020
European Parliament, Brussels

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