European active citizens for vaccines promotion 2019

Improve the awareness on vaccine benefit across Europe
Project

Leaders and activists engaged in social, civic and patients associations, parents, teachers, health workers, bloggers and popularizers: everyone can commit to disseminate correct scientific information, ready to defend the use of vaccinations from the wave of misinformation that is being spreading for some years

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The Engagement of Cittadinanzattiva-Active Citizenship Network on Therapeutic Adherence

At the National level
The topic of therapeutic adherence was addressed by Cittadinanzattiva through the National Coalition of Associations for Patients Suffering Chronic Diseases (CnAMC). The CnAMC is a network of Cittadinanzattiva established in 1996, which represents an example of crosscutting alliance between associations of people with chronic and rare diseases for the protection of their rights. It has about one hundred members.

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Our policy on patient safety: focus on Healthcare-Associated Infections (HAIs) and Antimicrobial Resistance (AMR)

Our commitment on the topic
Since its inception in 1978, Cittadinanzattiva Onlus has worked continuously to advocate for safer healthcare, first at the National level and then also at EU level through its international branch called Active Citizenship Network (ACN). In particular, in 2002, ACN drafted the European Charter of Patients' Rights together with other patient associations from 15 different countries. The Charter underlines, among others, the Patients’ Right to preventive measures, the Patients’ Right to the observance of quality standards, the Patients’ Right to safety, the Patients’ Right to Innovation.

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TOWARDS HIGHER PATIENT SAFETY IN EUROPEAN HOSPITALS. Innovation in hygiene and sanification to reduce healthcare associated infections and antimicrobial resistance

4-5 February 2019
Brussels

Background
Patient safety is the reduction of risk of unnecessary harm associated with health care to an acceptable minimum. An acceptable minimum refers to the collective notions of current knowledge, resources available and the context in which care was delivered and weighed against the risk of non-treatment or alternative treatment (WHO 2004).

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The Engagement of Cittadinanzattiva on Vaccination

Cittadinanzattiva has a more than 30 year experience in the protection of citizens' rights in the health sector, which initiated with its Tribunale per i diritti del malato ("Tribunal for Patients' Rights" or TDM) in 1980 and was later strengthened through the Coordinamento nazionale Associazioni Malati Cronici (National Coordination Centre of Chronic Patients' Associations) in 1996.

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Dialogue between Medicines for Europe and Active Citizenship Network

Since 2017 Medicines for Europe, through its Value Added Medicines Group, and Cittadinanzattiva Onlus, through its international branch Active Citizenship Network, have decided to cooperate for a better access to healthcare across Europe and for a better respect of patients' rights, starting from the patients’ right of access to healthcare, the patients’ right to innovation and the patients’ right to personalized treatment. In particular:

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Value Added Medicine Dialogue

In line with our increasing cooperation for a the better access to healthcare across Europe and in the field of patients' rights, starting from the Patients’ Right of Access, the Patients’ Right to Innovation and the Patients’ Right to Personalized Treatment, Active Citizenship Network has decided to co-organize the "Value added medicines dialogue" a workshop at European level on the 20 of November in Brussels. 

The purpose of this initiative is to provide for a selected number of leaders of patients’ organizations and advocacy groups across Europe an updated overview about the option of the value added medicines, to know more about the incremental innovation in drugs and to facilitate an exchange views on key policy developments related to value added medicines.

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Active Citizens in Europe advocate for vaccination - Training Seminar

6th   November 2018
Brussels

The 6th of November, ACN organized in Brussels an European training seminar on the theme of life-course vaccination opened to 20 selected leaders of civic and patients associations coming from different countries (Belgium, Bulgaria, Hungary, Italy, Ireland, Spain, Slovenia, Slovakia, Albania, Kosovo, Croatia, Malta...). The reason was to responds to the need to be more up-to-date and prepared in the face of a phenomenon (the decrease in vaccination coverage) that has returned to topical relevance; to better identify, recognize and struggle the increased external factors that can negatively influence the vaccine policy in EU Member States and have updated information & knowing how to recognize official sources of information.

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Active Citizens in Europe advocate for vaccination - Program

7^th November 2018
PHS 01C047
10.00 -12.00
European Parliament
Hosted by MEP David Borrelli, NI

Agenda

Moderator:  Suzanne Wait, The Health Policy Partnership

10:00 - 10:15 Welcome address

MEP David Borrelli, Group of non-attached Members

Mariano Votta, Director of Active Citizenship Network Read the speech

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Therapeutic adherence: value the impact for patients and healthcare system (PROGRAMME)

XII EUROPEAN PATIENTS’ RIGHTS DAY 2018

Therapeutic adherence: value the impact for patients and healthcare system

23 May 2018   9:30 - 13:00 
Room PHS - P7C050, European Parliament

PROGRAMME

Translation EN – ITA will be provided

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