2014: Pain therapy and palliative care in the European political agenda

Introduction
In compliance with art. 13 of Law no. 234/2012 on “general regulation on Italian participation in the development and fulfillment of the EU legislation and policies”, the Italian Government, on January 10th 2014 sent to the Italian Parliament the annual programmatic report for 2014 concerning “the Italian participation to the EU”. To what concern health protection, the Government indicated pain therapy and palliative care as areas of potential focus during the Italian Presidency of the Council of the European Union: an aspect that medicine progress makes news of current interest and on which our Country wants to share its own experience with other Member States.
In other words, with the Italian Presidency of the Council of the European Union, July-December 2014, for the first time chronic pain is in the European agenda and, as a consequence, the topic was brought to the attention of all European Health Ministries. All this happened during the Informal Meeting of European Health Ministries that each Presidency of the Council of the European Union organizes during its Semester.

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Best practices on Chronic Patients and Organizations’ Empowerment

ACN is looking for Best Practices! The most significant will be published and showed during the next European Patients’ Rights Day (12-13 May Brussels)

Participate with your experience! FILL IN THE FORM BY the 30th of MARCH

Rationale:
As mentioned in the Health WP 2013: “Patient empowerment is a core value of a modern patient-centred health system as advocated by the Council conclusions on common values and principles in European Union health systems (2006/C 146/01). However, the concept of patient empowerment is not clear, and patient empowerment is often perceived only as the use of eHealth tools. There are also concerns that an empowered patient may represent an increased cost for the health system.”

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8th European Patients’ Rights Day

May 12-13 2014
VM3 (2nd floor) Van Maerlant Bulding, 2, rue Van Maerlant, 1040
Brussels

Active Citizenship Network (ACN) has decided to dedicate the 8th celebration of the European Patients’ Rights Day 2014 (launched by ACN in 2003) to:

“The role of citizens' organisations in the empowerment of patients with chronic diseases”.

The patient empowerment does have two different but complementary dimensions:
1. Improvement of a person’s capabilities to effectively self-manage his/her chronic disease;
2. Enhancement of patient groups’ capacities to participate efficiently in health policies.  
In both cases, citizens’ organisations – which include self-help groups, associations of patients with a chronic disease, networks and umbrella organisations - play an essential role. Patients’ organisations educate and support individual patients and their families, while networks and umbrella organisations contribute to build their capacities to participate in the policy-making. 

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Fight the Fakes

Fake medicines put patients and the general public at risk. Patients believe they are receiving genuine treatment, but instead they are getting potentially dangerous products that could increase resistance to real treatments, and cause further illness, disability or even death.

Fight the Fakes is a campaign that aims to raise awareness about the dangers of fake medicines. The campaign gives a voice to those who have been personally impacted and shares the stories of those working to put a stop to this threat to public health. It seeks to build a global movement of organizations and individuals who will shine light on the negative impact that fake medicines have on people around the globe and to reduce the negative consequences on individuals worldwide.

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Civic EU Recommendations on chronic pain

Chronic pain affects around 20% of the adult population in Europe, yet it remains poorly managed and under-treated, affecting not only the patients, but society as a whole. It is time for EU and national authorities to recognise chronic pain as a priority and to ensure better diagnosis, fund research, adapt health insurance and guarantee that Europe’s 80 million sufferers get the treatment they need.

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