Active Citizenship Network will celebrate the 11th European Patients’ Rights Day with a multi-stakeholder conference, to be held on 10 May 2017 in Brussels.

The aim of the convention is to discuss, inform and suggest new approaches to the existing European and national medicines regulatory systems, for better management of access to innovation. Indeed, the access to innovative therapies strongly contributes to define the quality of life of patients and the quality of healthcare services provided, respecting the fundamental values recognised by the European Charter of Patients’ Rights. The event will be an occasion to inform, discuss and take commitments to improve the respect of patients’ rights and their involvement in the policy-making and regulatory processes at national and European level. Read more


European Patients' Rights Day 2016: the celebration of the 10th Anniversary

Active Citizenship Network has devoted the 10th edition of the European Patients’ Rights Day to the issue of “Reducing waste and inefficiency in the Healthcare Systems, increasing quality of patient care”. The European multi­-stakeholder conference has been held on the 4th of May 2016 at the European Parliament in Brussels with the aims to increase the culture of common goods and the fight of each form of waste, fostering the cooperation among different stakeholders - either public or private, civic and institutional - to find useful solutions. Read more!



The 9th edition of the European Patients’ Rights Day has been heald  in Brussels on 12 May 2015. Below is a list of the first organizations which have given us their support for the institutionalization:


9th European Patients’ Rights Day

12 May 2015 
European Parliament, rue RueWiertz 60,
1047 Brussels

Active Citizenship Network (ACN) has decided to dedicate the 9th celebration of the European Patients’ Rights Day 2015 (launched by ACN in 2003) to the sustainability of healthcare systems focusing on what concerns chronic diseases.
Chronic diseases represent the major share of the burden of disease in Europe and are responsible for 86% of all deaths. They affect more than 80% of people aged over 65 and represent a major challenge for health and social systems. An estimated € 700 billion per year (it means 70 to 80% of overall EU health care budgets)  are spent on chronic diseases in the European Union. Moreover, we need to keep in mind the increasing demands for expensive medical technology that are made by a society that is ageing rapidly. In this context, the sustainability of our health and social systems is at stake. It is crucial to find new ways of investing in sustainable health systems, moving beyond limiting expenditure to addressing the demand for health and social services, much of which is related to chronic diseases.


8th European Patients’ Rights Day - Conference Materials

"The role of citizens' organisations in the empowerment of patients with chronic diseases".
8th  European Patients’ Rights Day

May  12-13  2014

Conference Materials

The Program

Opening Remarks:
Tonio Borg,  Health Commissioner  (Video Message)
Ingrid Kössler, European Economic and Social Committee
Mariano Votta,  Director of Active Citizenship Network

Keynote Presentations about the empowerment concept in its complementary dimensions
Katja Neubauer, Deputy Head of Unit, Healthcare Systems Unit, DG SANCO
Rosa Suñol, EMPATHiE: the Study on "Empowering patients in the management of chronic diseases"
Birgit Beger, Secretary General, The Standing Committee of European Doctors (CPME)

 Keynote Presentations about different successful models to networking:
Mark Lawler, European Cancer Concord and Queens University Belfast
Tonino Aceti, National Coordinator, Italian Coalition of Associations for Patients suffering Chronic Diseases, CNAMC
Catherine Hartmann, European Chronic Disease Alliance (ECDA)
Kevin Walker, “Partnership to Fight Chronic Disease”,USA

Empowerment in chronic diseases: best practices
The REPORT:  Best practices on Chronic Patients and Organizations’ empowerment

Examples of National Best Practices from different EU Countries
Manuel Serrano, EUGENIE, Spain
Janet Mifsud, Caritas Epilepsy Association, Malta
Ugo Viora, National Association Rheumatic Patients, Italy

“Empowered patients are a resource”

The role of patient organizations in promoting and supporting life changing and life- saving research into treatments or cures for chronic diseases
David Taylor, UCL School of Pharmacy, UK (Moderator)
Patients' Needs, Medicines Innovation and the Global Public's Interests

Sustaining innovation and access
Nathalie Moll, Secretary General of EuropaBio

For further information please write to This email address is being protected from spambots. You need JavaScript enabled to view it.

Read the article ”European Patients’ Rights Conference – The role of citizens’ organizations in the empowerment of patients with chronic diseases” published by and written by Rosemary Colucci on May 29, 2014.

Read the article ”European Patients’ Rights Conference – The role of citizens’ organizations in the empowerment of patients with chronic diseases” published by and written byRosemary Colucci on May 29, 2014.

With the support of:
eu flag europe
The European Union,
in the framework of the Health Programme (2008-2013)

European Economic and Social Committee

This event has been made possible also thanks to an unrestricted educational grant from:

 novartis logo pharma logo 2014   pfizer logo





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