Directive 24/11: what the Associations recommend to the EU Institution

At European level, Active Citizenship Network addresses the EU Institutions so that they become facilitators and guarantors in:

  • building a network of National Contact Points;

  • begin a proper dialogue between the National Contact Points and the various stakeholders identified by the Directive as necessary interlocutors and at the same time striving to involve associations for patients and for the protection of rights;

  • promote opportunities for discussion and debate on the subject, for example within the EUHPF in order to disseminate awareness and maintain high attention to the important changes introduced by the Directive;

  • monitor the problems citizens may encounter while dealing with cross-border healthcare;

  • ensure that the development of e-health, urged by the Directive, may be safely carried out and without exposing the Member States to the risks of scams and frauds;

  • convey a European-oriented message built upon these new rights and provisions in healthcare which would help strengthen the sense of belonging to the European community.

(written in October 2013)

 

Directive 24/11: Public events all around Europe organized by ACN partners

To discuss with the national Institutions, inform the public opinion and to compare their experience with the ones coming from other Countries, civic and patients Associations linked to Active Citizenship Network have promoted public events. In particular:

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The patient involvement in the Directive 24/11 transposition: a first assessment

A brief summary of the information produced by associations clearly shows that the behaviour of the various Member States, compared with the involvement of citizens and patients' organizations can be classified into three types:

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Develop EU Pain Patient Pathways Recommendations


logo eu pain patient pathways


The Patients'Forum organized by Active Citizenship Network and Pain Alliance Europe last 22-23 October, 2013 it was the occasion to develop concrete proposals for the improvement of pain management in Europe: recommendations against pain, according to the patients point of view, for a good Health policy on chronic pain relief. With the Patients' Forum it started the II step of the project "Pain patients' pathway recommendations". 

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Make them informed! A campaign for the implementation of the Right of European Patients to make an informed choice

The 7th European Patients' Rights Day, realized by Active Citizenship Network in Brussels in May 2013, has been an occasion for all of us, representatives of national patient organizations, European platforms, EU and national institutions, representatives of healthcare providers etc. to share our experiences on the directive 2011/24/EU on cross border care and on patients' involvement in health policies on a multi-stakeholder basis.

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7th European Patients’ Rights Day

 "European Citizens' rights: patients' involvement and Cross Border Care"
16th May 2013 – Brussels

 The 2013 Conference promoted the involvement of citizens' and patients' organisations in health policies in Europe, both in general and in the implementation of the Directive 2011/24/EU on the application of patients’ rights in cross-border healthcare, which should be transposed in all EU Member States within 25 October this year.

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The patients’ involvement on Health policies in Europe: the citizens voice in Cancer Care decision making process

Framework and rational
The patients' involvement and citizen participation are going to enter in the European Agenda of Health policy. Many studies have been promoted by scientists' society, private company, Public bodies, etc about the necessity of a citizens' engagement in the Health choices. The lack of financial resources and the economic crisis in one side and the growing of Health research and new requirements about diseases' treatments in the other side require different behaviors and innovative model of governance. Despite the studies and the widespread belief about citizens' engagement, there is not a systematic commitment on it at European and Member State level.

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PAIN PATIENT PATHWAY RECOMMENDATIONS

Framework
logo eu pain patient pathwaysThe commitment against unnecessary pain is going to enter in the European Agenda of Health policy. A lot of data have been collected by scientists' society, private companies and governments, etc. about the diffusion of chronic pain and its societal and economical impact. New laws, as the Italian one, have proposed innovative contents to put in practice.
At the same time the willing of patients' organizations to have an even more active role in the commitment for reducing pain and in the promotion of a new policy on pain relief is growing. Recently, it was founded a new coalition of patients' and citizens' organizations, named PAE (Pain Alliance Europe), with the mission to represent the point of view of patients in the European pain policies.

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Summer School for civic leader in HTA: the Italian experience

Cittadinanzattiva (Active Citizenship) and SiHTA (Italian Society of HTA)have signed an agreement for the promotion of a summer school for civic leaders HTA in November 2011. The agreement is focused on three shared issues: 1) the need to support the development of HTA as a tool of government qualified public spending in a context of strong reduction of resources, 2) the absence in Italy of the citizens' involvement in the processes of evaluation, and 3) the lack of civic leadership aware and sufficiently informed.

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The Engagement of Cittadinanzattiva in the Fight against Useless Pain

Cittadinanzattiva has a more than 30 year experience in the protection of citizens' rights in the health sector, which initiated with its Tribunale per i diritti del malato ("Tribunal for Patients' Rights" or TDM) in 1980 and was later strengthened through the Coordinamento nazionale Associazioni Malati Cronici (National Coordination Centre of Chronic Patients' Associations) in 1996.

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