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The involvement of Active Citizenship Network in SIP 2016
In the context of the SIP 2016, ACN has been mainly involved in the Working Group 1 titled "Pain as a quality indicator for healthcare".
Because of its efforts in the fields of the protection of patients' rights and cross-borderhealthcare, ACN was entrusted with the secretariat of the Working Group 1, while Cittadinanzattiva-Tribunal for Patients' Rights was entrusted with the task of presenting, at European level, an example of good practice realized in Italy on pain treatment.
Symposium “Societal Impact of Pain” (SIP) 2016: “Time for action”
The 6th event of the Societal Impact of Pain (SIP) will address anyone involved in pain policy e.g. healthcare professionals, politicians, representatives of pain advocacy groups, insurances, health authorities, regulators and budget holders.
Reducing waste and inefficiency in the healthcare systems, increasing quality of patient care
In 2016, in the framework of the celebrations for the X European Patients’ Rights Day, Active Citizenship Network has carried out a research in order to gather good practices: concrete examples of actions aimed at reducing waste and inefficiencies in healthcare (waste caused, for example, by: unnecessary services; excessive administrative costs; inefficiently delivered services; prices set too high; fraud; missed prevention opportunities etc.. ) experienced in EU and no EU countries.
PATIENTS’ RIGHTS HAVE NO BORDERS…AS WELL AS RISKS!
May 3rd 2016, 16:30 - 18:30
Room ASP A7H1 - European Parliament, Brussels
Interpreting available (IT - EN)
Programme
“European Civic Prize on Chronic Pain - Collecting Good Practices"
Active Citizenship Network has launched the project ”EU Civic Prize on Chronic Pain - Collecting good practices”. The aim is to give evidence of existing good practices in European countries in terms of struggle against pain.
The establishment of a “European Civic Prize on Chronic Pain”, based on the selection of the practices presented by different healthcare stakeholders (patients’ associations, health professionals, private and public hospitals, universities, etc.) provides an occasion for demonstrating what this community can offer in terms of good practices and experiences which are useful in raising awareness about the condition, enhancing the body of knowledge of positive cases and success, and strengthening commitment to this topic.
EUROPEAN PATIENTS’ RIGHTS DAY 2016
10th European Patients’ Rights Day
Reducing waste and inefficiency in the healthcare systems, increasing quality of patient care
The 2016 European conference of the European Patients’ Rights Day focused on the fight against waste and inefficiency in healthcare systems in Europe and on the best practices to increase the efficacy and the quality of patient care.
It has been held on Wednesday, May 4th in Brussels at the European Parliament co-hosted by MEP David Borrelli, co-Chair of the EFDD Group and MEP Pier Nicola Pedicini, EFDD ENVI Committee Coordinator. The participants were leaders of civic and patient organizations coming from 25 Countries, some of them outside the European Union, such us Albania, Russia, Macedonia, Switzerland. With them, many representatives and leaders of 18 networks at EU level, professionals and experts, companies and providers, public relation agencies and other relevant stakeholders.
During the conference has been analyzed what has been done and what is been doing about it all around Europe and what is the role and the contribution of public and private sectors on it, as well as the ones of the civic society and patient organizations. It has been be also distributed the report of the European research carried out to find the good practices in this context. Some of the gathered good practices were showed and discussed.
The registration of the entire event could be seen here
The biographies of the speakers can be read here
Here below the programme and all the showed presentations:
10th European Patients’ Rights Day
Reducing waste and inefficiency in the healthcare systems, increasing quality of patient care
4 May 2016, 09:30 - 13:30
European Parliament, Brussels - Room ASP A1E2
PROGRAMME
Chair: Neil Betteridge - independent health consultant
09:30 - 10:00 Opening Remarks and keynote Presentations
MEP David Borrelli - Co-Chair of the Europe of Freedom and Direct Democracy Group
MEP Piernicola Pedicini - EFDD ENVI Committee Coordinator
Mariano Votta - Director of Active Citizenship Network
10:00 - 10:40 Overview
Stéphane Vandam - Public Health Officer of World Health Organization
Paul Vincke - Managing Director of European Healthcare Fraud and Corruption Network
Cristiana Montani Natalucci - Italian Tribunal for Patients’ Rights, Italy
10:40 - 11:40 The good practices about transforming health care overcoming inefficiencies and waste (1st PART)
The power of Technology :
No Delays: transforming delivery of health services and reducing reliance on traditional clinical interactions”- Jamie Hogg - Clinical Lead for Modernisation, NHS Grampian, Scotland
“National Development of Electronic Cancer Referral System in the Republic of Ireland”- Eileen Nolan Shortiss - National Cancer Control Programme, Ireland
“Use of a software to optimize the surgical process and to assure traceability of procedures in a high throughput orthopedic hospital” - Giuseppe Banfi - Scientific Director of IRCCS Galeazzi, Italy
Questions and answers
The power of a better organizational management:
“How does lean work in emergency care?”- Pamela Mazzocato - Medical Management Centre “Karolinska Institutet”, Sweden
“NHS Future Focused Finance (FFF) programme” - Virginia Minogue - Research lead, FFF programme, England
Questions and answers
11:50 - 12:30 The good practices about transforming health care overcoming inefficiencies and waste (2nd PART)
The power of Patient Engagement:
“PDTA: assistential and diagnostic-therapeutic paths “- Salvatore Leone - Amici Onlus, National Coalition of Associations for Patients suffering Chronic Diseases (CnAMC), Italy
The power of network:
“How can we use the “CHAIN” to increase value and reduce waste?” - David Evans - Contact, Help, Advice and Information Network (CHAIN), UK
Questions and answers
12:15 - 13:00 Round table:
MEP Giovanni La Via - EPP (video message)
Bert Van Caelenberg - Vice President of Health First Europe
Douglas Gregory - Member of EFPIA Heath Systems Working Group
Maarten de Wit - European League Against Rheumatism (EULAR)
Antonio Longo - European Economic and Social Committee
13:00 - 13:15 Questions & Answers
13:15 - 13:30 Vytenis Andriukaitis - European Commissioner for Health and Food Safety
13:30 Closing Remarks
Antonio Gaudioso - Secretary General of Cittadinanzattiva
For more information on the European conference and the Good Practices collection please write to Daniela Quaggia This email address is being protected from spambots. You need JavaScript enabled to view it.
Take action!
Please give us your feedback on the conference by filling in this brief on line questionnaire and tell us the topic you would you like to suggest for the next European Patients’ Rights Day!
The conference is realized thanks to the support of:
ENS4Care: Evidence Based Guidelines for Nurses and Social Care Workers for the deployment of eHealth services
Project Description
In 2014/2015 Active Citizenship Network has been one of the partner of the ENS4Care project:
ENS4Care is a Thematic Network gathering together 24 partners from all over Europe. Its main objective is to share good nursing and social work practices in eHealth services and, through evaluation and consensus building, create a set of guidelines on healthy lifestyle and prevention, early intervention and clinical practice, integrated care, skills development for advanced roles and nurse ePrescribing.
ENS4CarePartners
1. European Federation of Nurses Associations (EFN) – Belgium
The EFN was established in 1971. The EFN represents 34 National Nurses Associations and its work has an effect on the daily work of 6 million nurses throughout the European Union and Europe. The EFN is the independent voice of the nursing profession and its mission is to strengthen the status and practice of the profession of nursing for the benefit of the health of the citizens and the interests of nurses in the EU & Europe. The EFN is the project coordinator of the ENS4Care Thematic Network. It leads WP1 – Project Coordination and Management of the consortium.
Collection of good practices & “EU Civic Prize on Chronic Pain”
Project Description
In 2015, Active Citizenship Network wants to start a research-project at the European level with the aim to give evidence on existing good practices in several European countries in terms of struggle against pain.
In particular, the research allows us to give continuity - expanding it with some specificity – to the investigation for good practices in the struggle against pain started by ACN in 2012.
Patient Declaration on Medical Research, Innovation and theGlobal Search for Cures
Throughout the world, health outcomes have improved dramatically over the past decade. The key to this global health progress has been and continues to be the advance in science-based, medical innovation, including new procedures, diagnostics, health technologies and medicines.
While progress has been made, there is still an urgent need to accelerate the pace of drug discovery and research for tomorrow’s cures to address unmet health needs and to reduce the global and economic burden of illness and disease.
There is also much that must be done to strengthen health systems to ensure that these advancements reach the patients who need them. As Margaret Chan, Director-General of the World Health Organization (WHO) says, “Health systems are the foundation for better health. All the donated drugs in the world won’t do any good without an infrastructure for their delivery.”
We, the undersigned, call on national governments around the world to support the global search for new treatments and cures through policies that support, incentivize and promote medical discovery and innovation.
AND
We call on governments around the world to commit to providing sustainable health care delivery, so that people who need treatment and medicines can get them, no matter what their financial standing. Governments should ensure patient and citizen involvement in health policy development and transparency in their decision-making processes.
Dear participants of the next European Patients'Rights Day conference,
Active Citizenship Network would like your opinion, before the conference, on one of the document we would like to produce as output of this European Day: the “Patient Declaration on Medical Research, Innovation and the Global Search for Cures”.
It's objective is to raise awareness about the importance of incentivize medical research and innovation that addresses unmet patient needs and to show that there is support among patient organizations. In fact, throughout the world, health outcomes have improved dramatically over the past decade. The key to this global health progress has been and continues to be the advance in science-based, medical innovation, including new procedures, diagnostics, health technologies and medicines. While progress has been made, there is still an urgent need to accelerate the pace of drug discovery and research for tomorrow’s cures to address unmet health needs and to reduce the global and economic burden of illness and disease.
This is a Declaration open to your comments, change and suggestions. Please let us know your opinion. We will include your feedback in the final document that will become a Joint Declaration.
The Document will be presented in the European Parliament in Brussels in 2015 during the 9th edition of the European Patients’ Rights Day with the name/logo of endorsers.
For further information and to subscribe it, please send an email to: This email address is being protected from spambots. You need JavaScript enabled to view it.
To download it, click here
Thank you in advance
ACN staff
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