XIII EUROPEAN PATIENTS’ RIGHTS DAY 2019 - Speakers’ list

Delivering patient value throughout the healthcare system
Focus on Digital Health and Personalized Medicine

 

10th April 2019
European Parliament, Brussels
Room PHS 7C050

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XIII EUROPEAN PATIENTS’ RIGHTS DAY 2019 - Programme

Delivering patient value throughout the healthcare system
Focus on Digital Health and Personalized Medicine

 

10th April 2019
European Parliament, Brussels
Room PHS 7C050

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Sharing good practices against pain

Sharing good practices against pain Pain Euro Mediterranean Coalition Annual Meeting 2

Pain Euro-Mediterranean Coalition Annual Meeting 2019

4th May 2019
Location: Hotel Occidental Menorca
, Menorca Island (Spain)

The only theme park in the world against pain and quality of life, the Sine Dolore World Park, which was held in Menorca from May 1 to 5, hosted the second annual meeting of the Pain Euro-Mediterranean Coalition, the first civic center for the incubation of best practices against pain throughout Europe.

In this second meeting the participants debated the proposal of Dr. Jordi Moya that contemplates the creation of an International Multidisciplinary Pain Management Center Sine Dolore, an international pain treatment center where medical professionals from all over the world will offer personalized medical advice to the Patients who visit the Sine Dolore World Park 2020.

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XIII EUROPEAN PATIENTS’ RIGHTS DAY 2019 - Programme

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XIII EUROPEAN PATIENTS’ RIGHTS DAY 2019
Delivering patient value throughout the healthcare system
A Debate on citizens' expectations
April 9th, 2019 (12:30 - 15:00) - EU Parliament, Brussels

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XIII EUROPEAN PATIENTS’ RIGHTS DAY 2019 - Speakers’ list

image001

XIII EUROPEAN PATIENTS’ RIGHTS DAY 2019
Delivering patient value throughout the healthcare system
A Debate on citizens' expectations
April 9th, 2019 (12:30 - 15:00) - EU Parliament, Brussels

Read more...

XIII European Patients’ Rights Day 2019 (9th April 2019)

xiii european patients rights day 2019 9th april 2019 new 3

Delivering patient value throughout the healthcare system.
A Debate on citizens' expectations.
9th April 2019 - European Parliament, Brussels

At the occasion of the XIII European Patients' Rights Day, on the 9th of April 2019, a selection of candidates MEP for the new EU Parliament – representing different Countries and 4 different political Groups - have been invited to discuss different priority topics linked to healthcare policies at EU level, including health promotion & disease prevention, the value of and access to innovation.

In these days, a large number of Europeans believe the EU is heading in the wrong direction but we hope to convert that dissatisfaction into democratic zeal rather than political apathy. For this reason, we aimed to transform the Brussels event of the European Patients' Rights Day in a debate on citizens’ expectations about health issues, to ask to candidate MEPs to share their opinions on the challenges for Health in EU 2019 -2024. Indeed, we strongly believe that the reinforcement of the rights established in the EU Charter of Patients’ Rights will become effective only with the cooperation and commitment of all the healthcare stakeholders.

During the Conference an interaction tool enabled interactive Q&A, live polls and insights about the audience, giving to all the attendants – approximately a hundred people coming from different Member States – the opportunity to discuss and ask the MEPs about their future commitment on healthcare issues.

The event provided a civic perspective, putting and recognizing the citizens at the center of health policies, not only as “users or consumers” of health services or “patients” with a specific disease, but rather as active citizens participating in healthcare policymaking as essential stakeholders, strengthening our ‘European citizenship’ and trying to reduce the gap between citizens and Institutions, by showing also the benefits that the EU could offer to patients.

The Conference wanted mainly to exchange and discuss with candidates the needs of citizens and patients and how to strengthen their rights at European level, to contribute to set out the EU health agenda: influence and advocate on political priorities and to increase the cooperation among the EU Institutions and citizens & patient organizations.

As for the previous editions of the EPRD, about 100 people attended the conference. People selected among Active Citizenship Network constituency (civic & patients organizations, partners in EU projects, consultants, etc.); MEPs and their assistants; leaders of national and EU Brussels-based umbrella organizations/networks; European Commission members; relevant stakeholders (healthcare professionals, scientific societies, providers, companies, representatives of public and private sectors), media & Brussels-based PR agencies.
The event was kindly co-hosted by MEP Brando Benifei and MEP Elena Gentile from S&D group.

Click here to the Conference’s programme 
Click here to read the speakers’ biographies 
Click here to see the photos of the event 
Click here to see the webcast replay of the conference
Click here to read the press release 

The conference has been realized thanks to the support of

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For any further information please contact Bianca Ferraiolo This email address is being protected from spambots. You need JavaScript enabled to view it.

XIII European Patients’ Rights Day 2019 (10th April 2019)

xiii european patients rights day 2019 10th april 2019

Delivering patient value throughout the healthcare system.
Focus on Digital Health and Personalized Medicine.
10th April 2019 - European Parliament, Brussels

To continue the celebrations of the XIII European Patients' Rights Day, on the 10th of April has been held an event dedicated to Digital Health and Personalized Medicine. The aim  was to go into a topic related to several Patients’ Rights listed in the in the EU Charter of Patients’ Rights: the right to preventive measures (1st), the right to the observance of quality standards (8th), the right to safety (9th), the right to innovation (10th).

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TOWARDS HIGHER PATIENT SAFETY IN EUROPEAN HOSPITALS. Innovation in hygiene and sanification to reduce healthcare associated infections and antimicrobial resistance

5th February 2019
10.00 -12.00
European Parliament - Room ASP1E3
Hosted by MEP Brando Benifei, S&D

Agenda

 

Moderator: Brian Maguire, Journalist, EURACTIV

10:00 - 10:20 Welcome address
MEP Brando Benifei,
Group of the Progressive Alliance of Socialists and Democrats in the EP
Mariano Votta, Director of Active Citizenship Network

10:20 – 10:40 Overview
Charles Price,
Policy Officer for Antimicrobial Resistance and Healthcare-associated infection, European Commission Directorate for Public Health
Daniele Celotto, European network to promote infection prevention for patient safety (EUNETIPS)

10:40 – 11:00 The role of innovation in hygiene & sanification: a multicentre, prospective, intervention study
Elisabetta Caselli,
PhD - Section of Microbiology - Dept. of Medical Sciences, University of Ferrara
Luca Arnoldo, Hygiene and Public Health - Department of Medicine – University of Udine

11:00 – 11:45 PANEL DISCUSSION:
Denis Herbaux,
European Hospital and Healthcare Federation (HOPE)/Director PAQS
Giuseppe Banfi, European University Hospital Alliance (EUHA)/IRCCS Ospedale San Raffaele
Esther Calbo, European Regional and Local Health Authorities (EUREGHA)/Infection Control Program of Catalonia (VINCAT)
Melina Raso, Health First Europe

11:45 – 12:00 Comments from the floor and conclusions
Antonio Gaudioso,
Secretary General, Cittadinanzattiva

Read the Final remarks of Mariano Votta

To know more about the event click here

 

The event is realized thanks to the unconditional support of COPMA.

TOWARDS HIGHER PATIENT SAFETY IN EUROPEAN HOSPITALS. Innovation in hygiene and sanification to reduce healthcare associated infections and antimicrobial resistance

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On February 4th, 2019, Active Citizenship Network organized a European training seminar on patient safety & healthcare-associated infections (HAIs), opened to a selected number of leaders of patients’ associations and advocacy groups coming from twelve EU Member States plus an Extra EU Member State (Kosovo). During the seminar, the following topics were presented and discussed:

  • The overall public and private engagement on the topic;
  • The role of innovation to improve hygiene in the healthcare sector;
  • The case history of the innovative sanitation system PCHS®;
  • New strategies to advocate in this field of action.

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AGENDA

Facilitator: Brian Maguire, Journalist, EURACTIV

15.00 Welcome and Introduction
Mariano Votta, Director Active Citizenship Network

15.15 Infections and antimicrobial resistance and their impact on public health
George Griffin, President of the Federation of European Academies of Medicine (FEAM)

15.35 The commitment of the EU Commission on patient safety
Flora Kontopidou
, EU Joint Action on Antimicrobial Resistance and Healthcare Associated Infections

15.55 The case history of the innovative sanitation system PCHS®
Elisabetta Caselli
, PhD - Section of Microbiology - Dept. of Medical Sciences, University of Ferrara
Paola Antonioli, Specialist  in  Public  Health  -  Hospital  Hygiene  &  Healthcare  Associated  Infection  Risk  Management, Azienda Ospedaliero - Universitaria of Ferrara

16.45 - 16.55 Coffe Break  

17-10 Global infection prevention and control priorities 2018–22: a call for action
Daniele Celotto
, European network to promote infection prevention for patient safety

17.30 How can civic society be engaged on patient safety?
Daniela Quaggia
, Senior Project Manager, Cittadinanzattiva

17:45 Final discussion/questions

 

Documents and further information:

Download the speakers’ biographies and the minutes of the event.

To see all the pictures, visit our FB page.  

To know more please write to: This email address is being protected from spambots. You need JavaScript enabled to view it.

 

The initiative has been realized with the unconditional support of Copma


Making Patients voice matter: the role of value added medicines EU workshop co-organized by Medicines for Europe and Active Citizenship Network

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On November 20th, 2018, in line with their increasing cooperation in the field of patients' rights, Cittadinanzattiva Onlus, through its international branch the Active Citizenship Network, and Medicine and for Europe, through its Value Added Medicines Group, co-organized an European workshop in Brussels on value added medicines. Starting from the Patients’ Right of Access, the Patients’ Right to Innovation and the Patients’ Right to Personalized Treatment, the initiative provided a selected number of leaders of patients’ organizations and advocacy groups across Europe with an updated overview about value added medicines and facilitated an exchange of views on key policy developments linked to them.

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